Here’s just some of what we celebrated in 2022!
💜 We debuted new video and narrative patient stories
💜 We updated our abstracts page to include the most up-to-date important research
💜 We highlighted patient voices about parenting while ill
💜 We shared new resources for living with and navigating care for spinal CSF leak
💜 We celebrated “starting where you are” during duradash®
💜 We collaborated with Spinal CSF Leak Canada and The CSF Leak Association on an international leakweek
💜 We learned about new updates in our previously funded research grants
💜 We strengthened and grew our community on inspire, and cheered on community members as they rallied and raised awareness
💜 We published our physician directory
💜 We shared our vision for a better world for people with spinal CSF leak on GivingTuesday, with messages of hope and determination from patients and physicians
Thanks to all of YOU for being with us every step of the way!
Further reading/viewing
Here are links to everything referenced in the video: