Registration is now open for our “Spinal CSF Leak: Bridging the Gap” conference this November 15! This is a free virtual event. Register now!
Registration for Spinal CSF Leak: Bridging the Gap 2026 is now open!
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News
ileak registry®, an international patient registry for spinal CSF leak, is here!
Introducing ileak registry®, an international patient registry for spinal CSF leak, built on the NORD® IAMRARE® platform.
Spinal CSF Leak: Bridging the Gap 2025 conference videos are live!
Talks, Q&As, and a patient vidoe compilation from the 3rd annual Spinal CSF Leak: Bridging the Gap conference held virtually on November 15, 2025
The 2025 Intracranial Hypotension conference videos are live!
We are happy to share that the video replays from the June 28-29, 2025 Intracranial Hypotension Conference are now available for your viewing!
Meet our new Executive Director, Olivia Chelko
We are thrilled to welcome Olivia Chelko to the Spinal CSF Leak Foundation as our new Executive Director.
Chiari Malformation Awareness Month
Chiari 1 Malformation and spinal CSF leak have much in common—but they should not be confused, as treatment varies significantly.
COMING SOON: ileak registry®
Learn more about our upcoming international patient registry, ileak registry®, and how you can be a part of it!
Bridging the Gap Research Paper Published
We are thrilled to share this open access ANJR paper on perspectives from the inaugural Bridging the Gap Conference.
Clinician Education Initiative Update: Dr. Sharath Kumar
Dr. Sharath Kumar had been a practicing neuroradiologist for nine years when he encountered the patient that would change his life.
National Women Physicians Day
This national women physicians day, we’d like to thank the women physicians of the Spinal CSF Leak Foundation medical advisory board.
Inspire Your Heart with Art Day
People who live with spinal CSF leak find many ways to cope with this debilitating neurological disorder. For some, creating art is one way to help lighten the emotional load.
2023: The Year in Review
A look back at 2023 from the Spinal CSF Leak Foundation