Mayo Arizona Headache Clinic

Location: Scottsdale, AZ
Scope of practice: Diagnosis, Treatment (Non-invasive)
Ages: 18+
Physicians: Karissa Arca, MD; Laine Green, MD; Rashmi Halker Singh, MD; Todd Schwedt, MD; Amaal Starling, MD; Juliana VanderPluym, MD

– Contact: Mayo Clinic Central Appointment Office
– Phone: 480-301-8000
– Must be referred by a local physician

Cedars Sinai Medical Center – CSF Leak Program

Location: Los Angeles, CA
Scope of practice: Diagnosis, Treatment (Percutaneous), Treatment (Surgical)
Ages: 0+
Physicians: Wouter Schievink, MD (neurosurgeon); Rachelle Tache, NP-C (neurosurgery nurse practitioner); Marcel Maya, MD (neuroradiologist); Franklin Moser, MD (neuroradiologist); Ravi Prasad, MD (neuroradiologist); Vikram Wadhwa, MD (neuroradiologist); Mary Vijjeswarapu, MD (anesthesiologist); Syed Ali, MD (anesthesiologist); Howard Rosner, MD (anesthesiologist); Nasima Shadbehr, MD (headache neurologist)
Areas of care: Diagnosis, Treatment (non-invasive, percutaneous, and surgical)

– Primary Contact: Tu Vu
– Phone: 310-423-8949
– Fax: 310-967-8914
– Email: csfleak@cshs.org

– Secondary Contact: Patient Services Representative
– Phone: 310-423-7900
– Fax: (310) 967-8914
– Email: csfleak@cshs.org

– If you are interested in seeing Dr. Wouter Schievink and his team, please let us know so that we can send you additional details from Cedars-Sinai. Thank you!

Additional information:
– CSF leak treatment at Cedars-Sinai
– CSF leak patient guide

Kaiser Permanente – Spinal CSF Leak Program

Location: Santa Clara, CA
Scope of practice: Diagnosis, Treatment (Non-invasive), Treatment (Percutaneous), Treatment (Surgical)
Ages: 0+
Physicians: Mark Mamlouk, MD (Neuroradiology); Peter Shen, MD (Neuroradiology); Peter Jun, MD (Neuroradiology); Brian Dahlin, MD (Neuro Interventional Radiology); Mark Sedrak, MD (Neurosurgery)

PATIENTS MUST HAVE KAISER INSURANCE
– Please be referred by a physician and/or contact the admin.
– Admin Name: Camille Yanogacio
– Admin Phone: 408-851-5267
– Admin Email: camela.a.yanogacio@kp.org

Additional information:
– Kaiser Permanente Spinal CSF Leak Program

Stanford Headache Clinic at Hoover

Location: Palo Alto, CA
Scope of practice: Diagnosis, Treatment (Non-invasive), Treatment (Percutaneous)
Ages: 18+*
Physicians: Ian Carroll, MD

– Please call the Stanford Headache Clinic at Hoover
– Primary Phone for Hoover Clinic: 650-723-6469
– Primary Fax for Hoover Clinic: 650-725-0390

*Pediatric cases are handled by the Pediatric Pain Clinic in collaboration with Dr. Ian Carroll, Dr. Elliot Krane, and Dr. Genevieve D’Souza

UCSF Medical Center

Location: San Francisco, CA
Scope of practice: Diagnosis, Treatment (Non-Invasive), Treatment (Percutaneous), Treatment (Surgical)
Ages: 0+
Physicians: Vinil Shah, MD (Neuroradiology); William Dillon, MD (Neuroradiology); Maggie Waung (Headache Neurology); Leslie West (Neurology)

– Call or email Dr. Vinil Shah (neuroradiology)
– Referral by physician REQUIRED
– Primary Phone: 415-514-5654
– Primary Email: vinil.shah@ucsf.edu
– Primary Fax: 415-353-7299

Additional information:
– UCSF Department of Radiology and Biomedical Imaging

University of Colorado School of Medicine

Location: Aurora, CO
Scope of practice: Diagnosis, Treatment (Non-invasive), Treatment (Percutaneous), Treatment (Surgical)
Ages: 0+
Physicians: Andrew L Callen, MD (Neuroradiology); Samantha Petrucci, MD (Neuroradiology); Nadya Andonov, NP (Neuroradiology); Peter Lennarson, MD (Neurosurgery); Marius Birlea, MD (Headache Neurology)

– Primary Contact: Nadya Andonov, NP
– Primary Email: CSFleaks@cuanschutz.edu
– Primary Phone: 720-848-2080

Additional information:
University of Colorado CSF Leak Program

Midstate Radiology Associates, Hartford Health Care

Location: Meriden, CT
Scope of practice: Diagnosis, Treatment (Non-invasive), Treatment (Percutaneous)
Ages: 18+
Physicians: Jignesh Modi, MD (Neuroradiology)

NOTE: All patients must be referred by Hartford Healthcare Headache Center neurologists for suspected CSF leak. It is important that patients first make an appointment with Hartford Headache Center providers or physicians.

– Primary Contact: Laura Prior, APRN (Manager of Advanced Practitioners Radiology)
– Primary Phone: 203-694-8405

Additional information:
– Midstate Radiology website 
– Hartford Healthcare Headache Center website 

MedStar Georgetown University Hospital

Location: Washington, D.C.
Scope of practice: Treatment (Surgical)
Ages: 14+ (Neurosurgery), 0+ (Diagnostics and Percutaneous treatment)
Physicians: Vinay Deshmukh, MD (Neurosurgery); Anousheh Sayah, MD (Interventional Neuro-radiology); Carrie Dougherty, MD (Neurology); Katherine Hamilton, MD (Neurology); Amanda Tinsley, MD (Neurology); Benjamin Osborne, MD (Neuro-ophthalmology)

– Contact Phone: 202-444-8993
– Contact Fax: 202-444-7333

Cerebrospinal Fluid Dynamics Clinic – Mayo Clinic Florida

Location: Jacksonville, FL
Scope of practice: Diagnosis, Treatment (Non-invasive), Treatment (Percutaneous), Treatment (Surgical)
Ages: 18+ 
Physicians: Olga Fermo, MD (Headache Neurology); Thien Huynh, MD (Interventional Radiology)

– Contact Phone: 904-953-0856
– Contact Fax: 904-953-0897
– Patients may self-refer or be referred. They should call the Central Appointment Office and specify the appointment request is for the CSF Dynamics Clinic. Alternatively, patients may request an appointment online on the CSF Dynamics Clinic Website, where patients should also specify the CSF diagnosis in question. All appointment requests go through a nurse-lead triage process before booking.
– Website

Location: South Bend, IN
Scope of practice: Diagnosis, Treatment (Percutaneous)
Ages: 12+
Physicians: Venu Vadlamudi, MD (Neurointerventional Surgery)

– Contact: Sheila Chandler, IR Clinic Nurse Manager
– Contact Phone: 574-647-5200
– Contact Fax: 574-647-5210
-Please have your physician send a referral to our clinic including medical records and prior imaging.

Location: South Bend, IN
Scope of practice: Diagnosis, Treatment (Percutaneous)
Ages: 12+
Physicians: Venu Vadlamudi, MD (Neurointerventional Surgery)

– Contact: Sheila Chandler, IR Clinic Nurse Manager
– Contact Phone: 574-647-5200
– Contact Fax: 574-647-5210
-Please have your physician send a referral to our clinic including medical records and prior imaging.

MedStar Georgetown University Hospital

Scope of practice: Treatment (Surgical)
Ages: 14+ (Neurosurgery), 0+ (Diagnostics and Percutaneous treatment)
Physicians: Vinay Deshmukh, MD (Neurosurgery); Anousheh Sayah, MD (Interventional Neuro-radiology); Carrie Dougherty, MD (Neurology); Katherine Hamilton, MD (Neurology); Amanda Tinsley, MD (Neurology); Benjamin Osborne, MD (Neuro-ophthalmology)

– Contact Phone: 202-444-8993
– Contact Fax: 202-444-7333

Lahey Hospital and Medical Center — Neurointerventional Radiology

Scope of practice: Diagnosis, Treatment (Percutaneous), Treatment (Non-invasive), Treatment (Surgical)
Ages: 18+
Physicians: Emanuele Orrù, MD (Neurointerventional Radiology, co-director) Neil V Patel, MD (Neurointerventional Radiology, co-director) Jonathan Pace (Cerebrovascular Neurosurgery, director)
– Contact Phone: 781-744-3330
– Contact Fax: 781-744-5630
– Website

Additional information: Patients should call the main office line or email Kimberly Silverman (kimberly.silverman@lahey.org) or Mary Fox (mary.m.fox@lahey.org). The MDs will review the patient’s case and contact the patient as soon as possible. Currently primarily treating patients from MA, NH, VT, ME, and RI, but open to seeing patients from other geographic areas within the United States or internationally.

University of Michigan Hospitals, Department of Radiology

Location: Ann Arbor, MI
Scope of practice: Diagnosis, Treatment (percutaneous)
Ages: 0+
Physicians: Joseph J. Gemmete, MD

– Appointments: Phone: 734-936-9766
– Fax a Referral: 734-615-5111

If an outside referral is placed, it will need prior clinic notes and images, so we can place it in our Electronic Medical Records.

Mayo Clinic – CSF Dynamics Clinic

Location: Rochester, MN
Scope of practice: Diagnosis, Treatment (Non-invasive), Treatment (Percutaneous), Treatment (Surgical)
Ages: 18+
Physicians: Jeremy Cutsforth-Gregory, MD (Neurology, Director, CSF Dynamics Clinic); Ivan Garza, MD (Headache Neurology); Narayan Kissoon, MD (Headache Neurology); Mark Whealy, MD (Headache Neurology); Waleed Brinjikji, MD (Interventional Neuroradiology); John Benson, MD (Neuroradiology); Carrie Carr, MD (Neuroradiology); Felix Diehn, MD (Neuroradiology); DK Kim, MD (Neuroradiology); Greta Liebo, MD (Neuroradiology); Ajay Madhavan, MD (Neuroradiology); Pearse Morris, MB, BCh (Neuroradiology); Michael Oien, MD (Neuroradiology); Darya Shaplak, MD (Neuroradiology); Jared Verdoorn, MD (Neuroradiology); John Atkinson, MD (Neurosurgery); Rick Marsh, MD (Neurosurgery)

– Neurology Appt Center Phone #: 507-284-1588
– Neurology Appt Center Fax#: 507-284-2203
– Patients may be referred by their local neurologist or request an appointment themselves by calling the Mayo Clinic Neurology Appointment Center. Staff will assist in transferring images and records, which will then be reviewed to determine if an appointment can be offered. There are generally more appointment requests than can be accommodated. Triage is always based on medical need and the likelihood that evaluation at Mayo Clinic will help a patient in ways not available locally.

Additional information:
– Mayo Clinic: CSF leaks

Hospital for Special Surgery

Location: New York, NY
Scope of practice: Diagnosis, Treatment (Percutaneous)
Ages: 16+
Physicians: J. Levi Chazen, MD (Neuroradiology)

– Contact: Danielle Stoner (Admin Assistant)
– Phone: 212-606-1085
– Fax: 212-734-7475
– Email: stonerd@hss.edu
– Most patients are referred by their neurologist or other physicians for suspected CSF leak.

Additional information:
– About Dr. Chazen

Weill Cornell Medicine at New York Presbyterian Hospital

Location: Manhattan
Scope of practice: Diagnosis, Treatment (Non-invasive), Treatment (Percutaneous), Treatment Surgical
Ages: 0+
Physicians: Gayle Salama, MD (Neuroradiology); John Park, MD PhD (Neurosurgery); Jeffrey Greenfield, MD PhD (Neurosurgery); Matthew Robbins, MD (Headache Neurology)

– Patients are often referred by a physician, but self-referrals are allowed.
– Patients should be prepared to submit prior medical records, including imaging, related to their suspected spinal CSF leak prior to their initial consultation.

To contact, please call appropriate physician:
– Dr. Matthew Robbins, 212-746-7038 (Headache Neurology)
– Dr. Gayle Salama, 646-962-5757 (Neuroradiology)
– Dr. John Park, 718-670-1837 (Neurosurgery)
– Dr. Jeffrey Greenfield, 212-746-2363 (Neurosurgery)

Location: Queens
Scope of practice: Diagnosis
Ages: 18+
Physicians: Dev Mehta, DO (Headache Neurology)

– Contact: Neurology main office
– Phone: 718-670-1512
– Fax: 347-758-9529

Jenkins NeuroSpine

Location: New York, NY
Scope of Practice: Diagnosis, Treatment (non-invasive), Treatment (Surgical)
Ages: 5+
Physicians: Arthur L. Jenkins, III MD FACS FAANS (Spinal Neurosurgery)

– Phone: 646-499-0488
– Fax: 646-810-6486
– Email: info@jenkinsneurospine.com

Duke Radiology Spinal CSF Leak Program

Location: Durham, NC
Scope of practice: Diagnosis, Treatment (Percutaneous)
Ages: 0+
Physicians: Linda Gray Leithe, MD (Neuroradiology); Michael Malinzak, MD ( Neuroradiology); Timothy Amrhein, MD (Neuroradiology); Peter Kranz, MD (Neuroradiology); Jeff Taylor, PA-C; Hope Weant, NP-BC

FOR NEW PATIENT REFERRALS, SCHEDULING, OR TO SEND RECORDS:
– Please call the coordinator, Julie Fulcher RT(R)(CT), at 919-684-7214 (Press Option 2)

FOR ESTABLISHED PATIENTS WITH CLINICAL QUESTIONS:
– Please call the nursing line at 919-684-7770 to speak with Dana Jones, RN, VA-BC, CNIII

Additional information:
– Duke’s spinal CSF leak program

University of Cincinnati

Location: Cincinnati, OH
Scope of practice: Diagnosis, Treatment (Non-Invasive), Treatment (Percutaneous)
Ages: 13+
Physicians: J. Michael Hazenfield, MD (Neuroradiology); Vince Martin, MD (Headache medicine)

– Call or fax referral to UC Neuroradiology Spine Scheduling
– Phone: 513-475-8100
– Fax: 513-584-9100

Comprehensive Specialty Care

Location: Edmond, OK
Scope of practice: Diagnosis, Treatment (Percutaneous)
Ages: 13+
Physicians: Dan TD Nguyen, MD (Diagnostic & Interventional Neuroradiology); Doug P Beall, MD (Diagnostic & Interventional Musculoskeletal Radiology, Interventional Pain)

– Patients can request an appointment via phone call or on the website. Please bring all pertinent outside MRI studies for our review.
– Phone: 405-601-2325
– Fax: 405-497-6074
– Email: dn@clinrad.org
– Website

Jefferson Headache Center

Location: Philadelphia, PA
Scope of practice: Diagnosis, Treatment (Non-invasive), Other: Referral to radiology for additional treatment
Ages: 18+
Physicians: Simy Parikh, MD (Headache Neurology)

– Please have your referring physician or their assistant email Mea Moore at Mea.Moore@Jefferson.edu
– Please make sure the referral includes patient contact information, demographics, and most importantly insurance information.
– Please fill out this intake form and bring it to your first appointment with us.

MedStar Georgetown University Hospital

Scope of practice: Treatment (Surgical)
Ages: 14+ (Neurosurgery), 0+ (Diagnostics and Percutaneous treatment)
Physicians: Vinay Deshmukh, MD (Neurosurgery); Anousheh Sayah, MD (Interventional Neuro-radiology); Carrie Dougherty, MD (Neurology); Katherine Hamilton, MD (Neurology); Amanda Tinsley, MD (Neurology); Benjamin Osborne, MD (Neuro-ophthalmology)

– Contact Phone: 202-444-8993
– Contact Fax: 202-444-7333

Evergreen Health

Location: Kirkland, WA
Scope of practice: Diagnosis, Treatment (Non-invasive)
Ages: 18+
Physicians: Ian Hakkinen MD (Headache Neurology)

– Call for appointment
– Phone: 425-899-3135
– Fax: 425-899-3143
– Further info

UW Medicine Harborview / Seattle Children’s

Location: Seattle, WA
Scope of practice: Diagnosis, Treatment (Non-invasive), Treatment (Percutaneous), Treatment (Surgical)
Ages: 0+ (pediatrics at Seattle Children’s, adults at Harborview)
Physicians: Danial Hallam, MD, MSc (Interventional Neuroradiology); Robert Bonow, MD (Neurosurgery); Basavaraj V. Ghodke, MD (Neuroradiology)

– Physician referral required.
– Admin contacts: Majesty and Shelby
– Phone: 206-520-9709
– Fax: 206-520-9266