Updates from the Spinal CSF Leak Foundation

Pseudo-Chiari or Chiari Mimic in Intracranial Hypotension

Pseudo-Chiari or Chiari Mimic in Intracranial Hypotension

Because September is Chiari Awareness Month, we wish to draw attention to a diagnostic pitfall where intracranial hypotension (low intracranial cerebrospinal fluid volume/pressure) due to spinal cerebrospinal fluid (CSF) leak is concerned. When MRI of the brain is...

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Do Spinal CSF Leak Patients Need Additional Vaccinations?

Do Spinal CSF Leak Patients Need Additional Vaccinations?

  This is a common question. In the ACIP (Advisory Committee on Immunization Practices) recommendations, pneumococcal vaccination is recommended for patients with "CSF leaks", without distinguishing between cranial CSF leak with an anatomic barrier defect and...

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Polycystic Kidney Disease and SIH

Polycystic Kidney Disease and SIH

  Today, September 1, is Polycystic Kidney Awareness Day, #PKDAwarenessDay. Polycystic Kidney Disease (PKD) has been associated with spontaneous intracranial hypotension (SIH) due to spinal cerebrospinal fluid (CSF) leaks in a number of cases. More study is...

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New Partnership

New Partnership

We launched our online Support Community for those suffering with Spinal CSF Leaks in partnership with Inspire several months ago. Inspire is a trusted company that builds and manages many secure online support communities. We are pleased to announce that the CSF Leak...

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Classification of Spontaneous Spinal CSF Leaks

Classification of Spontaneous Spinal CSF Leaks

This is a VERY important paper by Schievink and hs colleagues outlining a classification of various types of spontaneous spinal CSF leaks. This does not apply to iatrogenic or traumatic leaks. The classification was based on a large sample size of well over 500...

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On Diamox? – Beware of the Champagne Blues

On Diamox? – Beware of the Champagne Blues

Rebound intracranial hypertension (high intracranial pressure) has been described after epidural patching and surgical procedures for intracranial hypotension (low intracranial pressure) resulting from spinal CSF (cerebrospinal fluid) leak. One of the treatments for...

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Expanding Epidural Patching Techniques for Spinal CSF Leak

Expanding Epidural Patching Techniques for Spinal CSF Leak

CT-fluoroscopy-Guided Ventral CSF Leak Patching Shared with permission from Timothy Amhrein, MD and Duke University Medical Center Several centers in the USA and elsewhere that see larger numbers of patients with spinal CSF (cerebrospinal fluid) leaks are continually...

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Diagnostic challenges in spontaneous intracranial hypotension

Diagnostic challenges in spontaneous intracranial hypotension

Spontaneous intracranial hypotension from spinal CSF leak is an important cause of headache, often quite disabling, that can be cured with treatment. The diagnosis, however, is not always as straightforward as one might imagine. Apart from low familiarity of an...

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Deconditioning in spinal CSF leak patients

Deconditioning in spinal CSF leak patients

Many patients with intracranial hypotension from spinal cerebrospinal fluid (CSF) leaks endure a limited ability to be functional while upright. Often much or most of the day is spent recumbent because that is often the only effective way to reduce the positional...

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