This is Day 4 of #leakweek 2018 – because your dura maters℠
Spinal cerebrospinal fluid (CSF) leak is an under-diagnosed cause of disabling daily headache with other neurological symptoms and complications that can happen to anyone. A spinal CSF leak is treatable, BUT ONLY if the correct diagnosis is made. The tagline – because your dura maters℠ – highlights the TREATABLE aspect of this often very disabling neurological disorder. Many patients, although not all, can be cured.
Could YOUR daily headache be due to a spinal CSF leak? Could you be cured?
Because spinal CSF leak is unfamiliar to most physicians, it is often misdiagnosed. Patients can suffer for months, years or decades with the wrong diagnosis and the wrong treatments. Medications rarely help. The most common symptom of headache is often much worse when upright, so patients may have limited ability to function normally while upright. The degree of DISABILITY varies from mild to profound.
Our primary goal of Leak Week is to raise awareness so that more patients might be correctly diagnosed and treated.
Please share our #leakweek 2018 factsheet
>>> Later today, meet Andrea J. Buchanan, who spoke with us about her journey with a spontaneous spinal CSF leak, her recovery and her soon-to-be-released book, THE BEGINNING OF EVERYTHING.
Watch for photos on social media of landmarks shining PURPLE this evening
(weather permitting)
Pennsylvania State Capitol – Harrisburg, PA
Atlantic Wharf – Boston, MA
Two International Place – Boston, MA
Barclay Damon Tower – Syracuse, NY
Calgary Tower – Calgary, AB
Galleria Trees on Stephen Avenue – Calgary, AB
CN Tower – Toronto, ON
Remember that tomorrow is Wear Purple Day!
Help us to raise awareness about #spinalCSFleak
Be sure to tune in tomorrow and Friday for Ask the Experts sessions LIVE on our Facebook page
#leakweek #becauseyourduramaters #spinalCSFleak