Headache on the Hill is an annual event by the Alliance for Headache Disorders Advocacy. Here, a Spinal CSF Leak Foundation advocate shares her experience.
“Headache on the Hill gave me hope about the future”
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News
In memoriam: Amanda J. Pickard, PhD
We are heartbroken to share the news that Amanda Pickard, our beloved vice-president of the board of directors of the Spinal CSF Leak Foundation, died on Tuesday, January 24, 2023.
2022: The Year in Review
Here’s just some of what we celebrated in 2022! We couldn’t have done it without you!
GivingTuesday 2022
This GivingTuesday, show your support of the Spinal CSF Leak Foundation’s ongoing efforts in education, awareness, and research.
Save the Date for the Fifth Cedars-Sinai Intracranial Hypotension Symposium
We are excited to announce that the Fifth Cedars-Sinai Intracranial Hypotension Symposium will take place July 8-9, 2023. The symposium will feature speakers from Asia, Australia, North America, and Europe. Stay tuned for information to come about all the speakers and...
Announcing the Spinal CSF Leak Foundation Physician Directory
Announcing our new physician directory, a curated list of medical professionals who are familiar with spinal CSF leak.
Survey: Medicare Coverage of Epidural Blood Patch for Spontaneous Spinal CSF Leak
If you are a patient with Medicare coverage who has received an epidural blood patch as treatment for a spontaneous spinal CSF leak, we invite you to take our anonymous survey.
“I became disabled overnight. Now I work and parent from bed.”
Like so many people who experience iatrogenic spinal CSF leak, Samantha Brandon had no idea how risky a routine lumbar puncture could be.
Research Update: Quality of Life in Patients with Confirmed or Suspected SIH
An update on the Foundation-funded research study “Quality of Life in Patients with Headache from Suspected or Confirmed Spontaneous Intracranial Hypotension (SIH): A Pilot Study”
Research Update: Thecal Sac Volume and Morphology as a Diagnostic Tool in SIH
An update on the Foundation-funded research study “Quantitative analysis of thecal sac volume and morphology as a diagnostic tool in SIH.”
Happy Father’s Day: A Father’s Story
In this video excerpt, Burke speaks about what it took to advocate for his son, Jack, who developed symptoms of spinal CSF leak at age 14.
New: Downloadable “Fact or Fiction?” cards
All of the “fact or fiction?” cards from #leakweek2022, available for download now in our “resource documents” section.