Survey: Medicare Coverage of Epidural Blood Patch for Spontaneous Spinal CSF Leak
The Spinal CSF Leak Foundation’s mission is to reduce the suffering of those affected by spinal CSF leak. To that end, we are passionately committed to furthering access to care for all patients.We are currently researching Medicare’s coverage of epidural blood...
“I became disabled overnight. Now I work and parent from bed.”
Like so many people who experience iatrogenic spinal cerebrospinal fluid (CSF) leak, Samantha Brandon had no idea how risky a routine lumbar puncture could be—until she found herself disabled from it. “Basically overnight, I went from being a successful...
Research Update: Quality of Life in Patients with Confirmed or Suspected SIH
Research update In early 2022, the Spinal CSF Leak Foundation awarded a research grant to Dr. Deborah Friedman for a pilot study titled “Quality of Life in Patients with Headache from Suspected or Confirmed Spontaneous Intracranial Hypotension (SIH).” The...
Research Update: Thecal Sac Volume and Morphology as a Diagnostic Tool in SIH
Poster presented by Dr. Knievel and Dr. Alhilali and their team in June 2022 Research update In 2018, the Spinal CSF Leak Foundation awarded a research grant to Dr. Kerry Knievel and Dr. Lea Alhilali of the Barrow Neurological Instituted. Their study, titled...
Happy Father’s Day: A Father’s Story
Happy Father’s Day from the Spinal CSF Leak Foundation! All during Leakweek 2022, we shared stories from families affected by spinal CSF leak. In this video excerpt, Burke speaks about what it took to advocate for his son Jack when Jack developed symptoms of a spinal...
Patient Stories
