Brain Awareness Week: Day Two

Brain Awareness Week: Day Two

  Head pain due to spinal CSF leak For many people experiencing spinal cerebrospinal fluid (CSF) leak, the most prominent symptom is head pain that worsens when upright and improves when lying down. But some patients never experience this kind of orthostatic...
National Women Physicians Day

National Women Physicians Day

  National Women Physicians Day marks the birthday of Elizabeth Blackwell, the first American woman to earn a medical degree. Blackwell was drawn to medicine after a dying friend remarked that had a female doctor cared for her, she might not have suffered so much....
The holidays can be hard when you’re hurting

The holidays can be hard when you’re hurting

If you’re living with spinal CSF leak and feeling overwhelmed by the holidays, here are some tips to help you navigate the season.     Be gentle with yourself. It’s important to remember that it’s okay to take things at your own pace and to prioritize your own...
Nick Stevens: A Journey to a Diagnosis

Nick Stevens: A Journey to a Diagnosis

Nick Stevens (he/they) shared their decade-long search for proper diagnosis and treatment for spinal CSF leak at the inaugural Bridging the Gap conference on November 11, 2023.   Nick’s story is, overall, one of remarkable resilience as they battled through years...
In conversation with Dr. Mark Mamlouk

In conversation with Dr. Mark Mamlouk

Spinal CSF Leak Foundation in conversation with Dr. Mark Mamlouk   Dr. Mamlouk took some time to discuss with us his most recent publication, “Factors Predictive of Treatment Success in CT Guided Fibrin Occlusion of CSF-Venous Fistulas, a Multicenter...
Spinal CSF Leak and Dysautonomia

Spinal CSF Leak and Dysautonomia

Dysautonomia awareness month October is Dysautonomia Awareness Month. Dysautonomia (from “dys-,” meaning bad or difficult, and “autonomic,” meaning occurring involuntarily or automatically) is the name for range of conditions that affect the...