Patient Stories: A leak at 71

Patient Stories: A leak at 71

John’s spinal CSF leak story Spinal cerebrospinal fluid (CSF) leak can affect anyone at any age. John was 71 years old when he experienced his first symptoms. Here is his story.   A troubling symptom emerges How old were you when your spinal CSF leak symptoms...
Chiari Malformation Awareness Month

Chiari Malformation Awareness Month

  What is Chiari Malformation? Chiari Type 1 Malformation is a congenital structural defect in the base of the skull and cerebellum. The cerebellum is the part of the brain located behind the top of the brain stem, low at the back of the head. It has two small areas...
Pain Awareness Month

Pain Awareness Month

September is pain awareness month For most people experiencing spinal cerebrospinal fluid (CSF) leak, pain is one of the most prominent, unrelenting symptoms, and treating it and living with it can be extremely challenging. According to the US Pain Foundation, 50...
Idiopathic Intracranial Hypertension Awareness Month

Idiopathic Intracranial Hypertension Awareness Month

  What is Idiopathic Intracranial Hypertension? Idiopathic Intracranial Hypertension or IIH is a condition characterized by increased pressure inside the skull. (Idiopathic means “arising from an unknown cause”; intracranial means “in the skull”; and hypertension...
2023 Intracranial Hypotension Conference: Highlights

2023 Intracranial Hypotension Conference: Highlights

2023 Intracranial Hypotension Conference The 2023 Intracranial Hypotension Conference, which took place July 8th and 9th in Kohala Coast, Hawaii, featured a wonderful two days of information-packed presentations from physicians and researchers across the globe. As a...
In conversation with Dr. Andrew Callen

In conversation with Dr. Andrew Callen

Spinal CSF Leak Foundation in conversation with Dr. Andrew Callen   Dr. Callen took some time to discuss with us his most recent publication, “A Causative Role for Remote Dural Puncture and Resultant Arachnoid Bleb in New Daily Persistent Headache,” a remarkable...