Patient Stories: A sudden illness, a swift resolution
Diana’s spinal CSF leak story Many people with spinal cerebrospinal fluid (CSF) leak find the experience challenging and stressful, even if they are diagnosed and treated promptly. Diana’s case stumped the doctors she saw, and she had to advocate for...
Patient Stories: A 20-year mystery
Kimberly’s spinal CSF leak story Many people with spinal cerebrospinal fluid (CSF) leak experience delays in diagnosis and treatment. In Kimberly’s case, she lived with challenging symptoms for 20 years until her spinal CSF leak was finally diagnosed and...
Research Update: Quality of Life in Patients with Confirmed or Suspected SIH
Research update In early 2022, the Spinal CSF Leak Foundation awarded a research grant to Dr. Deborah Friedman for a pilot study titled “Quality of Life in Patients with Headache from Suspected or Confirmed Spontaneous Intracranial Hypotension (SIH).” The...
Research Update: Thecal Sac Volume and Morphology as a Diagnostic Tool in SIH
Poster presented by Dr. Knievel and Dr. Alhilali and their team in June 2022 Research update In 2018, the Spinal CSF Leak Foundation awarded a research grant to Dr. Kerry Knievel and Dr. Lea Alhilali of the Barrow Neurological Instituted. Their study, titled...
Happy Father’s Day: A Father’s Story
Happy Father’s Day from the Spinal CSF Leak Foundation! All during Leakweek 2022, we shared stories from families affected by spinal CSF leak. In this video excerpt, Burke speaks about what it took to advocate for his son Jack when Jack developed symptoms of a spinal...
Patient Stories
