Pain Awareness Month
September is pain awareness month For most people experiencing spinal cerebrospinal fluid (CSF) leak, pain is one of the most prominent, unrelenting symptoms, and treating it and living with it can be extremely challenging. According to the US Pain Foundation, 50...
Idiopathic Intracranial Hypertension Awareness Month
What is Idiopathic Intracranial Hypertension? Idiopathic Intracranial Hypertension or IIH is a condition characterized by increased pressure inside the skull. (Idiopathic means “arising from an unknown cause”; intracranial means “in the skull”; and hypertension...
Fellow Education Funding Award
The Spinal CSF Leak Foundation is thrilled to announce that Dr. Emma Sechrist is the recipient of our Fellow Education Funding Award. This award enables a physician in training to attend this year’s Cedars-Sinai Intracranial Hypotension Conference, coming up July 8-9,...
Partnering with NORD® to create a patient registry
Spinal CSF Leak Foundation is proud to announce that we are partnering with NORD® to create a registry for spinal CSF leak patients. The National Organization for Rare Disorders is an independent nonprofit that built its IAMRARE® online registry platform as...
The Sky’s the Limit: Advice from Zack and Anthony
In our recent story, “The Sky’s the Limit: A Friendship Reaches New Heights,” we met Zack and Anthony, whose friendship only strengthened in the face of Zack’s battle with spinal CSF leak. After talking with them about Anthony’s Ironman...
Patient Stories
