Asia’s Spinal CSF Leak Story

Asia’s Spinal CSF Leak Story

Asia had to fight to have her pain taken seriously as a Black woman with an invisible illness. But she found a community online that helped connect her with specialists who correctly diagnosed and treated her spinal CSF leak. Asia Gibson was 28 and incredibly active,...

Comments from our most recent symposium: Advice

In this video from our most recent symposium, people affected by spinal CSF leak share words of advice. Our next symposium is October 2, 2021, and will be a hybrid event, both in-person and live-streaming. Register and find out more information here:...
Casey’s Spinal CSF Leak Story

Casey’s Spinal CSF Leak Story

Casey, a life-long adrenaline enthusiast, runs marathons and races cars for fun. But at 38, he found himself sidelined with terrible head pain. Casey Kempner is a self-described adrenaline enthusiast, a multi-sport athlete throughout high school and college whose idea...
#duradash spotlight: Melissa Geraghty

#duradash spotlight: Melissa Geraghty

Melissa Geraghty shared her thoughts with us about how she plans to participate in this year’s #duradash. Visit her page to see updates on her progress and give your support! Check out Melissa’s #duradash page here! Dr. Melissa Geraghty, a clinical health...
Research Roundup: Foundation-Supported Research in Progress

Research Roundup: Foundation-Supported Research in Progress

Four grants awarded by the Spinal CSF Leak Foundation are still in progress: Kerry Knievel, DO, and Lea Alhilali, MD, Barrow Neurological Institute. “Quantitative Analysis of Thecal Sac Volume and Morphology as Diagnostic Tool in Intracranial Hypotension.” In this...

Comments from our most recent Symposium: Hope

In this video from our last symposium, patients, caregivers, and others affected by spinal CSF leak share what they’re hopeful about in terms of research and treatment. Our next symposium is October 2, 2021, and will be a hybrid event, both in-person and...