It’s not uncommon for patients to encounter misdiagnoses and delays before finding a proper diagnosis and effective treatment for spontaneous intracranial hypotension due to a spinal cerebrospinal fluid (CSF) leak. When Emma became ill at age 11, it took finding...
It’s not uncommon for patients to suffer for years before finding a proper diagnosis and effective treatment for spontaneous intracranial hypotension due to spinal cerebrospinal fluid (CSF) leak. When Karri’s daughter Hailey became ill, it started her family on...
It’s not uncommon for patients to suffer delays in finding a proper diagnosis and effective treatment for spontaneous intracranial hypotension due to spinal cerebrospinal fluid (CSF) leak. For Hailey and her family, however, it took ten years. This is her story....
Today is the start of #leakweek2022! All throughout the week, in partnership with Spinal CSF Leak Canada and the CSF Leak Association, we’ll be sharing FACTS and FICTIONS about spinal CSF leak. Test your knowledge, and share with family and friends who may not...
June is National Migraine and Headache Awareness Month Throughout National Migraine and Headache Awareness Month, the headache, migraine, and cluster community aims to address this year’s theme of “Advocate for Access” by focusing on removing barriers to therapies and...
Sign up today help raise awareness and funds for spinal CSF leak research and education! duradash® is a virtual activity challenge that runs from June 1 – June 12. During these 12 days, we are encouraging people to aim for a total of 150 minutes of ANY activity, to be...
