Research Update: Quality of Life in Patients with Confirmed or Suspected SIH
Research update In early 2022, the Spinal CSF Leak Foundation awarded a research grant to Dr. Deborah Friedman for a pilot study titled “Quality of Life in Patients with Headache from Suspected or Confirmed Spontaneous Intracranial Hypotension (SIH).” The...
Research Update: Thecal Sac Volume and Morphology as a Diagnostic Tool in SIH
Poster presented by Dr. Knievel and Dr. Alhilali and their team in June 2022 Research update In 2018, the Spinal CSF Leak Foundation awarded a research grant to Dr. Kerry Knievel and Dr. Lea Alhilali of the Barrow Neurological Instituted. Their study, titled...
Happy Father’s Day: A Father’s Story
Happy Father’s Day from the Spinal CSF Leak Foundation! All during Leakweek 2022, we shared stories from families affected by spinal CSF leak. In this video excerpt, Burke speaks about what it took to advocate for his son Jack when Jack developed symptoms of a spinal...
New: Downloadable “Fact or Fiction?” cards
All throughout #leakweek2022, we invited our community to test their spinal CSF leak knowledge via “Fact or Fiction?” graphics devised by the Foundation, Spinal CSF Leak Canada, and The CSF Leak Association. Now all of the cards are available in our Resource Documents...
A Caregiver’s Perspective: Burke’s story
It’s not uncommon for patients to be disbelieved before eventually finding a proper diagnosis and effective treatment for spontaneous intracranial hypotension due to a spinal cerebrospinal fluid (CSF) leak. When Jack became ill at age 14, his parents Jody and...
Patient Stories
