Supporting research in 2018

Supporting research in 2018

Jun 28, 2018 | News

Our mission is to reduce the suffering of those affected by spinal cerebrospinal fluid (CSF) leaks. How? – raising awareness – educating the general public and those affected – educating healthcare professionals – supporting research By funding...
Zac’s journey to a headache cure

Zac’s journey to a headache cure

Jun 17, 2018 | News, Patient Stories

Zac Gordon is not your average spinal CSF leak patient. As a quirky stuntman, he charmed Howard Stern on “America’s Got Talent.” As a gym instructor, he teaches kids “ninja” parkour skills. Just 4 months after spinal surgery, he is back to doing flips again. Zac with...
#leakweek 2018 in review

#leakweek 2018 in review

Mar 10, 2018 | News

Today we would like to recap #leakweek 2018 Our primary goal of Leak Week has been to raise awareness about spinal cerebrospinal fluid (CSF) leak so that more patients might be correctly diagnosed and treated. We featured 3 very informative expert interviews: • Wouter...
Diane’s headache story

Diane’s headache story

Mar 9, 2018 | News, Patient Stories

Diane thought her spinal CSF leak had been thoroughly treated. But when her symptoms returned, it would take nearly eight years and surgery to fully address the underlying cause: a CSF-venous fistula. It was summer 2008 when Diane, on vacation with her family, bent...
leakweek 2018 – day 6

leakweek 2018 – day 6

Mar 9, 2018 | News

This is Day 6 of #leakweek 2018 – because your dura maters℠ Spinal cerebrospinal fluid (CSF) leak is an under-diagnosed cause of disabling daily headache with other neurological symptoms and complications that can happen to anyone. A spinal CSF leak is...
An interview with Dr. Linda Gray

An interview with Dr. Linda Gray

Mar 8, 2018 | Expert Interview, News

  Spinal cerebrospinal fluid (CSF) leak is an under-diagnosed cause of disabling daily headache with other neurological symptoms and complications that can happen to anyone. The underlying problem is a hole or tear of the dura mater along the spine, the tough...