Conference Videos

Since 2017, the Spinal CSF Leak Foundation has facilitated the bringing together of clinicians, researchers, patients, and caregivers to share and learn about the latest advances in diagnostics and treatment of spinal CSF leak. Our goal with the conferences we support is to elevate awareness and education within the medical community, stimulate further research, and reduce the burden of suffering for patients and their loved ones. Below are video replays from some of the conferences we have supported.

Spinal CSF Leak: Bridging the Gap between Patients and Providers Presented by Dr. Andrew Callen and the University of Colorado Anschutz Medical Campus in partnership with the Spinal CSF Leak Foundation November 11, 2023 8:15am - 5:00pm MST FREE TO ATTEND ONLINE OR IN-PERSON!

2023 Bridging the Gap Conference

Video replays from the 2023 Bridging the Gap Conference are shared below. The conference was hosted by the Spinal CSF Leak Foundation and UC Anschutz Medical Campus, on November 11, 2023, in Denver, Colorado.

 

Welcome

Opening Remarks (Dr. Andrew Callen)

 

SIH: ARRIVING AT A DIAGNOSIS

Patient Talk: Journey to a Diagnosis (Nick Stevens)

Provider Talk: Challenges in the Diagnosis of Intracranial Hypotension (Dr. Marius Birlea)

Provider Talk: Clinical Mimics of SIH (Dr. Deborah Friedman)

Patient Talk: Emotional Lability as a Normal Reaction to Abnormal Circumstances (Dr. John Reiman)

Provider Talk: Challenges in the Radiographic Diagnosis of Intracranial Hypotension (Dr. Jessica Houk)

Special Speaker: Navigating Spinal CSF Leak Care When You Are Not at a Major Referral Center (Dr. Jill Rau)

Special Speaker: A Clinical Care Model for Spinal CSF Leak (Dr. Andrew Callen)

 

TREATMENT: PERCUTANEOUS AND SURGICAL

Provider Talk: Epidural Blood Patch Basics (Dr. Ian Carroll)

Patient Voices: Epidural Blood Patches (Members of the spinal CSF leak community)

Provider Talk: The History of Surgical Treatment for Spinal CSF Leaks (Dr. Wouter Schievink)

Patient Talk: The Surgical Experience (Dr. Claudia Perez Sandhu)

The Scope of Surgery for CSF Leaks (Dr. Peter Lennarson)

 

POST-TREATMENT: RECOVERY, REBOUND SYMPTOMS, AND POTENTIAL RELAPSE

What is the Evidence for Post-Patch Care (Dr. Lalani Carlton Jones)

Patient Voices: Post-Patch Care and RIH (Members of the spinal CSF leak community)

Rebound Intracranial Hypertension: Clinical Presentation and Treatment (Dr. Prem Subramanian)

Patient Talk: Recovery is a Verb (Jen MacKenzie)

Provider Talk: The Approach to the Complex Patient (Dr. Ilene Ruhoy)

Patient Talk: On Living with a Persistent Leak (Jodi Ettenberg)

Patient Voices: Thoughts on Recovery (Members of the spinal CSF leak community)

Research Updates in Spinal CSF Leaks (Dr. Ian Carroll)

Patient Voices: What Doctors Should Know (Members of the spinal CSF leak community)

2023 Cedars-Sinai Intracranial Hypotension Conference

Video replays from the 2023 Cedars-Sinai Intracranial Hypotension Conference will be shared below. The conference was hosted by Cedars-Sinai, with generous support from the Spinal CSF Leak Foundation, on July 8-9, 2023, in Kohala Coast, Hawaii.

 

SIH Diagnostic Basics & Challenges

Dr. Deborah Friedman—Clinical mimics: Post-Traumatic Headache, NDPH, and Occipital Neuralgia

Dr. Wouter Schievink—Clinical mimics: bvFTD and BBA

Dr. Cindy Xi—Headache in Mast Cell Activation Syndrome: Differential Diagnosis or Comorbidity

Dr. Geoffrey Parker—SIH Cranial Imaging: Qualitative and Quantitative

Dr. Wouter Schievink—Types of Spontaneous Leaks: Anatomy and Pathogenesis

Dr. Marcel Maya—Spinal Imaging: Diagnostic Algorithm I

Dr. Peter Kranz—Spinal Imaging: Diagnostic Algorithm II

Dr. Jürgen Beck—New Diagnostics: Cine MRI and CSF-PET

 

SIH Pathophysiology

Cassie Parks—Heritable Disorders of Connective Tissue and Spontaneous CSF Leaks

Dr. Aruna Rao—CSF Dynamics: Intracerebral Pressure Monitoring in CSF Hypotension

 

 

Iatrogenic Leaks

Dr. Ian Carroll—Iatrogenic Leaks: PDPH, needle type data; can we reduce the incidence

Dr. Andrew Callen—Iatrogenic Leaks: Imaging of Post Dural Puncture Headache

Dr. Jürgen Beck—Iatrogenic Leaks: Surgical, How Common, and How Often are They Missed

 

 

SIH Complications

Dr. Jürgen Beck—Subdural Hematomas in SIH: Incidence and Management

Dr. Shuu-Jiun Wang—Cerebral Venous Thrombosis: Incidence and Management

Dr. Marcus Stoodley—Spinal Manifestations in SIH

Dr. Jennifer Harris—Superficial siderosis

 

Current and Evolving Treatment Approaches

Dr. Mike Malinzak—Percutaneous Approaches to Spinal CSF Leaks

Dr. Marcel Maya—Endovascular Approaches to Spinal CSF Leaks

Dr. Ray Chu—Surgical Approaches for Cervical Ventral Leaks

Dr. Wouter Schievink—Surgical Approach for Thoracic and Lumbar Ventral Leaks

Dr. Rudolph Schrot—Surgical Approaches for Sacral Tarlov Cysts

 

Related CSF Disorders: What Can We Learn?

Dr. Mike Malinzak—Diagnostic Imaging in Idiopathic Intracranial Hypertension

Dr. Geoffrey Parker—Endovascular Approaches for Idiopathic Intracranial Hypertension

Dr. Ray Chu—Shunting for Idiopathic Intracranial Hypertension

Dr. Marcus Stoodley—Syringomyelia Pathophysiology, Imaging, and Management

 

Rebound Intracranial Hypertension

Dr. Peter Kranz—Rebound Intracranial Hypertension: Diagnosis, Imaging, and Natural History

Dr. Deborah Friedman—Rebound Intracranial Hypertension: Medical Treatment

Dr. Geoffrey Parker—Rebound Intracranial Hypertension: Interventional Treatments and Cautions

 

Research Updates

Dr. Deborah Friedman—Quality of Life in Patients with Confirmed or Suspected Spinal CSF Leaks

Dr. Ian Carroll—Long-term Outcomes of EBP in Patients who Fail to Meet ICHD-3 Diagnostic Criteria

Dr. Jürgen Beck—Research Update: Quality of Life After Surgical Treatment of SIH

2021 Cedars-Sinai Intracranial Hypotension Symposium

Video replays from the Fourth Cedars-Sinai Intracranial Hypotension Symposium, hosted by Cedars-Sinai in partnership with Spinal CSF Leak Foundation on Oct. 2, 2021, in Los Angeles, CA, are presented here.

 

Diagnosis of SIH: The Challenging but Critical First Step

Jeremy Cutsforth-Gregory, MD
Assistant Professor of Neurology, Department of Neurology
Mayo Clinic, Rochester, MN

 

The Varied Clinical Presentations of SIH

Dr. Deborah Friedman, MD, MPH
Professor of Neurology and Ophthalmology
Founding Director of Headache and Facial Pain Program
UT Southwestern Medical Center, Dallas, TX

 

Current SIH diagnostic imaging (with leak classification)

Marcel Maya, MD
Neuroradiology
Professor & Co-Chair, Department of Imaging
Cedars-Sinai, Los Angeles, CA

 

Anatomy and pathogenesis of spinal CSF leaks

Wouter I. Schievink, MD – Course Director
Professor of Neurosurgery
Director, CSF Leak Program
Director, Vascular Neurosurgery
Department of Neurosurgery
Cedars-Sinai, Los Angeles, CA

 

Anatomy and pathogenesis of CSF-venous fistulas

Peter G. Kranz, MD
Associate Professor
Chief, Neuroradiology Division, Department of Radiology
Duke University Medical Center, Durham, NC

 

Approach to suspected SIH in centers without a dedicated SIH program

Jill C. Rau, MD, PhD
Neurologist – Headache Specialist
HonorHealth Neuroscience Institute, Scottsdale, AZ

 

Persistent or relapsing symptoms post-treatment

Abhay R. Moghekar, MBBS
Associate Professor of Neurology, Neurosurgery & Otolaryngology
Research Director, Center for CSF Disorders
Johns Hopkins Hospital, Baltimore, MD

 

Practical post-treatment considerations

Charles Louy, MD, PhD
Director, Inpatient Pain and Pediatric Pain Services
Assistant Director, Pain Management Fellowship Program
And Rachelle Tache, Nurse Practitioner, Department of Neurosurgery
Cedars-Sinai, Los Angeles, CA

 

Current percutaneous treatment approaches (by leak type)

Timothy J. Amrhein, MD
Associate Professor of Radiology
Director of Spine Intervention
Division of Neuroradiology, Department of Radiology
Duke University Medical Center, Durham, NC

 

Current surgical treatment of spinal CSF leaks (by leak type)

Wouter I. Schievink, MD – Course Director
Professor of Neurosurgery
Director, CSF Leak Program
Director, Vascular Neurosurgery
Department of Neurosurgery
Cedars-Sinai, Los Angeles, CA

 

Investigational: CT-guided fibrin glue for CSF-venous fistulas

Mark D. Mamlouk, MD
Director, TPMG Spinal CSF Leak Program
Kaiser Permanente Santa Clara, CA
Assistant Clinical Professor of Neuroradiology – Volunteer
UCSF, San Francisco, CA

 

Investigational: Transvenous embolization of CSF-venous fistulas

Waleed Brinjikji, MD
Interventional Neuroradiology and
Endovascular Neurosurgery
Departments of Neurosurgery & Radiology
Mayo Clinic, Rochester, MN

 

Outcomes of EBP in patients who fail to meet ICHD3 diagnostic criteria

Ian Carroll, MD, MS
Associate Professor of Anesthesiology, Perioperative and Pain Medicine
Chief, Stanford CSF Leak Headache Program
Stanford University School of Medicine, Stanford, CA

2020 Cedars-Sinai Intracranial Hypotension Symposium

Video replays from the Third Annual Cedars-Sinai Intracranial Hypotension Symposium professional track are presented here. The symposium was hosted by Cedar-Sinai in partnership with Spinal CSF Leak Foundation on Feb. 8, 2020.

 

Basics of Spontaneous & Iatrogenic Spinal CSF Leaks

Wouter I. Schievink, MD – Course Director
Professor of Neurosurgery
Director, CSF Leak Program
Director, Vascular Neurosurgery
Department of Neurosurgery
Cedars-Sinai, Los Angeles, CA

 

SIH: Every Cranial Nerve

Dr. Deborah Friedman, MD, MPH
Professor of Neurology and Ophthalmology
Founding Director of Headache and Facial Pain Program
UT Southwestern Medical Center, Dallas, TX

 

Imaging of SIH: 30-years’ experience at UCSF

William P. Dillon
Elizabeth Guillaumin Professor of Radiology
Executive Vice Chair
Department of Radiology & Biomedical Imaging
University of California San Francisco, San Francisco, CA

 

Tailored spine imaging in SIH

Dr. Richard Farb
Associate Professor, Dept of Medical Imaging
University of Toronto
Toronto, Canada

 

SIH imaging tips & tricks

Peter G. Kranz, MD
Associate Professor
Chief, Neuroradiology Division, Department of Radiology
Duke University Medical Center, Durham, NC

 

SIH: Cedars-Sinai Imaging Approach

Marcel Maya, MD
Neuroradiology
Professor & Co-Chair, Department of Imaging
Cedars-Sinai, Los Angeles, CA

 

Some Misconceptions About CSF Physiology

Abhay R. Moghekar, MBBS
Associate Professor of Neurology, Neurosurgery & Otolaryngology
Research Director, Center for CSF Disorders
Johns Hopkins Hospital, Baltimore, MD

 

New Insights in the Mechanisms & Treatments for Headache Disorders

Stephen D. Silberstein, MD
Professor of Neurology
Director, Jefferson Headache Center
Thomas Jefferson University, Philadelphia, PA

 

SIH: Considerations in Conception, Pregnancy & Childbirth

Rachelle Cruz, NP
Nurse Practitioner, Department of Neurosurgery
Cedars-Sinai, Los Angeles, CA

 

Percutaneous adventures in SIH

Dr. Linda Gray Leithe
Associate Professor
Neuroradiology Division, Department of Radiology
Duke University Medical Center, Durham, NC

 

More percutaneous adventures in SIH

Marcel Maya, MD
Neuroradiology
Professor & Co-Chair, Department of Imaging
Cedars-Sinai, Los Angeles, CA

 

Reaching for the highest volume in EBP: effective and safe?

Charles Louy, PhD, MD
Professor of Anesthesiology
Medical Director, Inpatient Pain Service
Associate Program Director, Pain Management Fellowship
Department of Anesthesiology
Cedars-Sinai, Los Angeles, CA

 

Single catheter multi-level approach to EBP for SIH

Joseph Gemmete, MD
Professor in the Departments of Radiology, Neurosurgery, Neurology, and Otolaryngology
University of Michigan, Ann Arbor, MI

 

Surgical treatment for SIH: the final option

Wouter I. Schievink, MD – Course Director
Professor of Neurosurgery
Director, CSF Leak Program
Director, Vascular Neurosurgery
Department of Neurosurgery
Cedars-Sinai, Los Angeles, CA

2018 Cedars-Sinai Intracranial Hypotension Symposium

Selected video replays and slide sets from the 2018 Cedars-Sinai Intracranial Hypotension Symposium are presented here. The symposium was hosted by Cedars-Sinai in partnership with Spinal CSF Leak Foundation on October 13, 2018 at the Marina del Rey Marriott in Marina del Rey, CA.

 

Video replays and slide sets:

Ten Myths & Misconceptions about SIH

Peter G. Kranz, MD
Assistant Professor
Director of Spine Intervention Service
Division of Neuroradiology, Department of Radiology
Duke University, Durham, NC
Slide set: SIH – 10 Myths and Misconceptions 2018

 

SIH: CSF Outflow Resistance & Other Objective Measures

Jürgen Beck, MD
Director, Department of Neurosurgery
Medical Center – University of Freiburg
Freiburg, Germany
Slide set: CSF outflow resistance + other objective measures 2018

 

SIH: ICP Monitoring

Abhay Moghekar, MBBS
Assistant Professor of Neurology
Research Director
Johns Hopkins Center for CSF Disorders
Baltimore, MD
Slide set: SIH – ICP Monitoring 2018

 

Slide sets only:

Slide set: SIH – The 1st 1111 Patients 2018

Wouter I. Schievink, MD
Professor of Neurosurgery
Director, Cerebrospinal Fluid Leak Program
Director, Vascular Neurosurgery Program
Cedars-Sinai, Los Angeles, CA

 

Slide set: SIH Mechanisms of Headache 2018

Stephen Silberstein, MD
Professor of Neurology
Director, Jefferson Headache Center
Thomas Jefferson University, Philadelphia, PA

 

Slide set: Orthostatic Headaches DDX + Dx criteria SIH 2018

David Dodick, MD
Professor of Neurology
Medical Director of Headache Program
Medical Director of Sport Neurology and Concussion Program
Mayo Clinic, Scottsdale, AZ

 

Slide set: Rebound Intracranial Hypertension 2018

Deborah Friedman, MD, MPH
Professor of Neurology and Ophthalmology
Department of Neurology and Neurotherapeutics
Founding Director of Headache and Facial Pain Program
UT Southwestern Medical Center, Dallas, TX

 

Slide set: SIH Imaging + Percutaneous Treatment 2018

M. Marcel Maya, MD
Co-chair, Department of Imaging;
S. Mark Taper Foundation Imaging Center
Cedars-Sinai, Los Angeles, CA

Slide set: SIH Percutaneous treatment at Cedars-Sinai 2018

Charles Louy, PhD, MD, MBA
Medical Director, Inpatient Pain Service
Associate Program Director, Pain Management Fellowship
Department of Anesthesiology,
Cedars-Sinai, Los Angeles, CA

 

Slide set: SIH Percutaneous treatment at Duke 2018

Linda Gray-Leithe, MD
Associate Professor
Division of Neuroradiology
Department of Radiology
Duke University, Durham, NC

 

Slide set: SIH Clinical Trials and Research Endeavors 2018

Timothy Amrhein, MD
Assistant Professor
Division of Neuroradiology
Department of Radiology
Duke University, Durham, NC

 

Slide set: SIH and or POTS 2018

Ian Carroll, MD, MS
Assistant Professor of Anesthesiology
Perioperative and Pain Medicine
Stanford University Medical Center, Palo Alto, CA

 

Slide set: SIH Pain Management 2018

Philip Peng, MBBS
Professor of Anesthesia, University of Toronto
Director of Research, Wasserman Pain Management Center, Mount Sinai Hospital
Toronto, Ontario, Canada

 

Slide set: Intractable Headache 2018

Dr. Silberstein and Dr. Dodick addressed a common challenge: Persistent Symptoms Post-Treatment

2017 Cedars-Sinai Intracranial Hypotension Symposium: Physician track

Video replays and slide sets from the first Cedars-Sinai Intracranial Hypotension Symposium professional track are presented here. The symposium was hosted by Cedar-Sinai in partnership with Spinal CSF Leak Foundation on October 14, 2017.

 

Differential Diagnosis of Orthostatic Headache

Morris Levin, MD
Professor of Neurology; Director, Headache Center
UCSF Department of Neurology, San Francisco, CA
Slide set: Differential Diagnosis of Orthostatic Headache

 

Mechanisms of Headache in Intracranial Hypotension

Stephen Silberstein, MD
Professor of Neurology; Director, Jefferson Headache Center
Thomas Jefferson University, Philadelphia, PA
Slide set: Mechanisms of Headache in Intracranial Hypotension

 

Heritable Disorders of Connective Tissue – Joint Hypermobility

Clair Francomano, MD
Adult Genetics; Harvey Institute for Human Genetics
Greater Baltimore Medical Center, Baltimore, MD
Slide Set: Heritable Disorders of Connective Tissue – Joint Hypermobility

 

Current Approach to Cranial and Spinal Imaging

M. Marcel Maya, MD
Co-chair, Department of Imaging;
S. Mark Taper Foundation Imaging Center
Cedars-Sinai, Los Angeles, CA
Slide Set: Current Approach to Cranial and Spinal Imaging

 

Serious Complications of Intracranial Hypotension and Surgical Approaches in Intracranial Hypotension

Wouter Schievink, MD, Course Director
Professor of Neurosurgery; Director, Cerebrospinal Fluid Leak Program; Director, Vascular Neurosurgery Program
Department of Neurosurgery
Cedars-Sinai, Los Angeles, CA
Slide set: Serious Complications of Intracranial Hypotension

 

Rebound Intracranial Hypertension: A Joint Presentation

Peter G. Kranz, MD
Associate Professor of Neuroradiology; Department of Neuroradiology, Duke University, Durham, NC
and
Wouter Schievink, MD
Professor of Neurosurgery; Director, Cerebrospinal Fluid Leak Program; Director, Vascular Neurosurgery Program, Department of Neurosurgery, Cedars-Sinai, Los Angeles, CA
Slide set: Rebound Intracranial Hypertension

 

Current & Evolving Percutaneous Treatment Approaches: Cedars-Sinai – A Joint Presentation

Charles Louy, PhD, MD, MBA
Medical Director, Inpatient Pain Service; Medical Director, Pediatric Pain Service; Associate Program Director, Pain Management Fellowship; Department of Anesthesiology, Cedars-Sinai, Los Angeles, CA
and
M. Marcel Maya, MD, Co-chair, Department of Imaging; S. Mark Taper Foundation Imaging Center, Cedars-Sinai, Los Angeles, CA
Slide set: Current & Evolving Percutaneous Treatment Approaches: Cedars-Sinai

 

Current & Evolving Percutaneous Treatment Approaches: Duke – A Joint Presentation

Linda Gray-Leithe, MD – and – Peter G. Kranz, MD
both Associate Professors of Radiology, Department of Neuroradiology, Duke University, Durham, NC
Slide set: Current & Evolving Percutaneous Treatment Approaches: Duke

2017 Cedars-Sinai Intracranial Hypotension Symposium: Patient track

Selected video replays and slide sets from patient track of the 2018 Cedars-Sinai Intracranial Hypotension Symposium are presented here. The symposium was hosted by Cedars-Sinai in partnership with Spinal CSF Leak Foundation on October 13, 2018 at the Marina del Rey Marriott in Marina del Rey, CA.

 

Video replays and slide sets:

Update on Intracranial Hypotension for Patients

Wouter Schievink, MD, Course Director
Professor of Neurosurgery; Director, Cerebrospinal Fluid Leak Program; Director, Vascular Neurosurgery Program
Department of Neurosurgery
Cedars-Sinai, Los Angeles, CA
Slide set: Update on Intracranial Hypotension for Patients

 

Integrative Approach for Patients with Intracranial Hypotension – part 1

Integrative Approach for Patients with Intracranial Hypotension – part 2

Connie Deline, MD, Course Director
Intracranial Hypotension Patient
Co-founder and VP, Spinal CSF Leak Foundation
Camp Hill, PA
Slide set: Integrative Approach for Patients with Intracranial Hypotension – part 1
Slide set: Integrative Approach for Patients with Intracranial Hypotension – part 2

 

Navigating the Social Security Disability and Long Term Disability Process

James Shea, PhD, JD
Social Security Disability Law
Law Office of James P. Shea, Los Angeles, CA
Slide set: Navigating the Social Security Disability and Long Term Disability Process

 

On Being the Spouse of a Spinal CSF Leak Patient

Michael Zetz, DDS
Oral & Maxillofacial Surgery (retired)
President, Spinal CSF Leak Foundation
Charleston, SC
Slide set: On Being the Spouse of a Spinal CSF Leak Patient

 

Sensible Physical Restrictions after Epidural Patching Procedures or Surgery

Laura Freed, MPT
Intracranial Hypotension Patient
Owner, Apex Physical Therapy, Parkersburg, WV
Slide set: Sensible Physical Restrictions after Epidural Patching Procedures or Surgery