Updates from the Spinal CSF Leak Foundation

Why are Diagnostic Codes Important?

Why are Diagnostic Codes Important?

When health care professionals see patients, they attach diagnostic labels with codes to the patient’s medical record. These codes are from ICD -10, the International Classification of Diseases, Tenth Revision. How are these used and why are these codes important? •...

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Support us when you shop

Support us when you shop

There are two ways that you can support us when you shop online at no cost to you. 1) When you shop with Amazon, start with AmazonSmile and Amazon will donate to our foundation - smile.amazon.com http://smile.amazon.com/ch/47-1141080   2) When you shop a wide...

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POTS or a spinal CSF leak?

POTS, positional orthostatic tachycardia syndrome, is a type of autonomic dysfunction in which patients experience symptoms and signs with upright posture. Spinal CSF leak also causes symptoms and signs that are worse with upright posture. It should be no surprise...

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#leakweek – day 7

#leakweek – day 7

Today is DAY 7 of Spinal CSF Leak Awareness Week. Our focus for our last day of Leak Week is: Prognosis of spinal cerebrospinal fluid (CSF) leak and Looking Forward. Prognosis While published patient outcomes remain rather limited, we do know that most patients do...

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#leakweek – day 6

#leakweek – day 6

Today is DAY 6 of Spinal CSF Leak Awareness Week. Our focus for today is: Treatment of spinal cerebrospinal fluid (CSF) leak, also known as intracranial hypotension. Treatment Treatments for spinal CSF leaks vary from conservative to surgical procedures. The specific...

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#leakweek – day 5

#leakweek – day 5

Today is DAY 5 of Spinal CSF Leak Awareness Week. We will focus today on  Causes and Classification of spinal cerebrospinal fluid (CSF) leak, also known as intracranial hypotension. Causes There are 3 main causes of spinal CSF leak: • Medical procedures (lumbar...

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#leakweek – day 4

#leakweek – day 4

Today is DAY 4 of Spinal CSF Leak Awareness Week. Our focus for today is on: Diagnosis of spinal Cerebrospinal fluid (CSF) leak. For the majority of patients with spinal CSF leak, the diagnosis is missed entirely or delayed by months or years. Because this is...

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Rare Disease Day 2017

Rare Disease Day 2017

Today is Rare Disease Day. A disease or disorder is defined as rare in the US when it affects fewer than 200,000 Americans at any given time. A disease or disorder is defined as rare in Europe when it affects fewer than 1 in 2000. Spontaneous spinal CSF leak is...

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#leakweek – day 2

#leakweek – day 2

Today is DAY 2 of Spinal CSF Leak Awareness Week. Our focus for today is: Symptoms of spinal cerbebrospinal fluid (CSF) leak. We will be covering other aspects of spinal CSF leak throughout the week. The most common symptom is a positional headache, worse when upright...

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#leakweek – day 1

#leakweek – day 1

Today is DAY 1 of Spinal CSF Leak Awareness Week. Spinal cerebrospinal fluid (CSF) leak is an important cause of new onset headache that can be very disabling. Importantly, it is treatable and can be curable with the correct diagnosis and with access to the right...

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