Four grants awarded by the Spinal CSF Leak Foundation are still in progress: Kerry Knievel, DO, and Lea Alhilali, MD, Barrow Neurological Institute. “Quantitative Analysis of Thecal Sac Volume and Morphology as Diagnostic Tool in Intracranial Hypotension.” In this...
https://youtu.be/HYbg-SXuX7c In this video from our last symposium, patients, caregivers, and others affected by spinal CSF leak share what they’re hopeful about in terms of research and treatment. Our next symposium is October 2, 2021, and will be a hybrid event,...
Spinal CSF Leak Foundation is pleased to announce that we are accepting applications for our new Patient Advisory Panel for Research through July 1, 2021. For the application link, role description, and more information,...
Harvey Myers shared his thoughts with us about how he plans to participate in this year's #duradash. Visit his page to see updates on his progress and give your support! Check out Harvey's #duradash page here! Harvey has been living with symptoms of spinal CSF leak...
Jodi Ettenberg shared her thoughts with us about how she plans to participate in this year's #duradash. Visit her page to see updates on her progress and give your support! Check out Jodi's #duradash page here! Jodi Ettenberg, 41, has been living with spinal CSF leak...
Ann Elizabeth Kay Marvin shared her thoughts with us about how she plans to participate in this year's #duradash. Visit her page to see updates on her progress and give your support! Check out Ann Elizabeth's #duradash page here! Ann Elizabeth, 34, has been living...
Leisha Jones shared her thoughts with us about how she plans to participate in this year's #duradash. Visit her page to see updates on her progress and give your support! Check out Leisha's #duradash page here! Leisha's spinal CSF leak was surgically repaired about 7...
Becky Bosch shared her thoughts with us about how she plans to participate in this year's #duradash. Visit her page to see updates on her progress and give your support! Check out Becky's #duradash page here! Becky, 33, was diagnosed with a spontaneous spinal CSF leak...
Ann Fields shared her thoughts with us about how she plans to participate in this year's #duradash. Visit her page to see updates on her progress and give your support! Check out Ann's #duradash page here! Ann, who is 58, had a spontaneous spinal CSF leak that was...
Connie Rim shared her thoughts with us about how she plans to participate in this year's #duradash. Visit her #duradash page to see progress updates and to give your support! Check out Connie's #duradash page here! Connie, who is 48, acquired two spinal CSF leaks...
Living with a spinal CSF leak is difficult. And when you’re a caretaker of others, it can be even more of a challenge. Add to that the cultural expectations that exist around motherhood, and many mothers living with leaks find themselves stretched as thin as dura...
Living with a spinal CSF leak is difficult. And when you’re a caretaker of others, it can be even more of a challenge. Add to that the cultural expectations that exist around motherhood, and many mothers living with leaks find themselves stretched as thin as dura...