November is National Family Caregivers Month, honoring the over 53 million Americans who are unpaid caregivers to family, friends, and neighbors. Caregiving is not always convenient or expected—as the Caregiving Action Network puts it, “caregiving happens.”
Many people with spinal CSF leak rely on family members and caregivers for help with daily life. For those who cannot be upright without experiencing severe neurological symptoms, having help with meals, housework, parenting, and daily life activities is critical.
Check out the stories from Karri, Amberly, Burke, and Jody, who shared their experiences as caregivers to family members with spinal CSF leak.
Further information:
If you are a caregiver to someone, you can learn more about caregiving and find support at the following links:
Caregiver Action Network
A non-profit organization providing education, peer support, and resources to family caregivers across the country free of charge.
Family Caregiver AllianceAn organization whose mission is to improve the quality of life for family caregivers and the people who receive their care.
The National Alliance for Caregiving
Offering resources, information, and support for caregivers.
Rare Caregiver Respite Program from NORD
This first-of-its-kind assistance program is designed for caregivers of a child or adult diagnosed with a rare disorder.
Caregiver Support from USA.gov
Offering federal, state, and local resources for caregivers.