We’re so thrilled about all the exciting progress underway at the Spinal CSF Leak Foundation—and so grateful to you for your support!
This holiday season, we have some exciting news: A generous donor has pledged to match donations up to $55,000. Currently, we’ve raised $20,000 towards that goal. Can you help us get to $55,000 and unlock the matching donation?
The Spinal CSF Leak Foundation is passionate about expanding awareness, funding research, and providing educational resources for both patients and physicians so that people with spinal CSF leak are able to have timely access to diagnosis, care, and treatment for this disabling condition. Your donations are 100% responsible for turning this passion into reality.
Thanks to the support of people like you, we have been able to accomplish so many milestones over the years, including:
💜 Securing ICD-10 codes for SIH
💜 Connecting with other organizations to help advocate for people with headache disorders
💜 Establishing an international expert symposium
💜 Building a resource library of informative and educational videos from physicians and patients
💜 Creating inclusive educational programming to reflect the experiences of people in our community
💜 Sharing a public physician directory
💜 Launching a new clinician education initiative to help physicians learn about and increase awareness of spinal CSF leak
💜 Inaugurating an important new conference to bridge the gap between the patient and provider experience
💜 And funding meaningful research, including the recently published study quantifying the real-life, disabling impact of spinal CSF leak and demonstrating the effect it has on quality of life.
With your continued generosity, we will be able to pursue the important work that lies ahead: launching our patient registry, establishing a research network, and continuing to drive the conversation around spinal CSF leak awareness to not only include but center the experiences of those who live with it.
If you’re excited about the Bridging the Gap conference videos, our global initiative to educate physicians and improve care for spinal CSF leak patients, the research we fund, and the patient registry we are in the process of launching, please consider supporting the Spinal CSF Leak Foundation this holiday season so we can continue doing this important work!
By donating today, your gift will be matched dollar-for-dollar, instantly doubling its impact.
Thank you for helping us make a lasting difference in the lives of people affected by spinal CSF leak!