Connie Rim shared her thoughts with us about how she plans to participate in this year's #duradash. Visit her #duradash page to see progress updates and to give your support! Check out Connie's #duradash page here! Connie, who is 48, acquired two spinal CSF leaks...
By Andi Buchanan Taking responsibility Years before I had my spinal CSF leak, I was an avid yoga-goer. I did Ashtanga yoga and really loved the practice of it, the way that each day on the mat offered a different possibility. One day, I was struck by something the...
Headache on the Hill, which took place March 22-23, is an annual advocacy event in Washington DC organized by the Alliance for Headache Disorders Advocacy (AHDA), whose mission is to advocate for equitable policies for people with headache diseases—including...
It’s National Doctors' Day! We are so grateful for the tireless efforts of the physicians on our medical advisory board to not only help diagnose and treat people living with spontaneous intracranial hypotension and spinal CSF leak, but to continually push research...
Sometimes, intracranial hypotension (low intracranial cerebrospinal fluid volume/pressure) due to spinal cerebrospinal fluid (CSF) leak can be mistakenly attributed to Chiari malformation. The cerebellum is the part of the brain located behind the top of the brain...
Central nervous system manifestations Central nervous system complications from low CSF volume and pressure secondary to spinal CSF leak may or may not be directly related to the low CSF volume and pressure but are very frequently reported. These include: Cognitive...
Intracranial hypotension (low cerebrospinal fluid volume and pressure) from a spinal CSF leak is increasingly recognized as a cause of subdural fluid or blood collections such as subdural hygromas (a collection of fluid in subdural space) and subdural hematomas...
There are 12 pairs of cranial nerves that can be affected by the brain sag caused by spinal cerebrospinal fluid (CSF) leak. Some cranial nerves are affected more commonly than others. Here are some of common symptoms, and the cranial nerves associated with them:...
Each day this week, we’ll be discussing some of the neurological symptoms and complications related to spinal cerebrospinal fluid (CSF) leak. Up first, by far the most common symptom (though not seen in every patient): Headache. The loss of CSF volume due to a leak...
In recent years, the awareness of spontaneous intracranial hypotension (SIH) has increased such that more patients are being diagnosed correctly. But sadly, misdiagnosis remains the rule rather than the exception. Too many suffer for months, years, or even decades...
Spinal CSF Leak Foundation is thrilled to share the news that Andrea Buchanan has been hired as the Foundation’s first Executive Director. Andi has been a volunteer with the Spinal CSF Leak Foundation since 2018, and a member of the Board of Directors since 2019. Andi...
https://youtu.be/nNtdSEaUgPo In this video, recorded at last year’s Symposium, medical professionals share their top take-aways from the annual Cedars-Sinai Intracranial Hypotension Symposium hosted in partnership with the Spinal CSF Leak Foundation. For more...