News

#duradash spotlight: Arianna Benedetti

#duradash spotlight: Arianna Benedetti

Arianna Benedetti shared her thoughts with us about how she plans to participate in this year's #duradash. Visit her page to see updates on her progress and give your support! Check out Arianna's #duradash page here! Arianna, 31, began experiencing symptoms of a...

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Comments from our most recent symposium: Advice

https://youtu.be/HeS9-VlzVn4 In this video from our most recent symposium, people affected by spinal CSF leak share words of advice. Our next symposium is October 2, 2021, and will be a hybrid event, both in-person and live-streaming. Register and find out more...

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#duradash spotlight: Melissa Geraghty

#duradash spotlight: Melissa Geraghty

Melissa Geraghty shared her thoughts with us about how she plans to participate in this year's #duradash. Visit her page to see updates on her progress and give your support! Check out Melissa's #duradash page here! Dr. Melissa Geraghty, a clinical health...

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Research Roundup: Foundation-Supported Research in Progress

Research Roundup: Foundation-Supported Research in Progress

Four grants awarded by the Spinal CSF Leak Foundation are still in progress: Kerry Knievel, DO, and Lea Alhilali, MD, Barrow Neurological Institute. “Quantitative Analysis of Thecal Sac Volume and Morphology as Diagnostic Tool in Intracranial Hypotension.” In this...

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Comments from our most recent Symposium: Hope

https://youtu.be/HYbg-SXuX7c In this video from our last symposium, patients, caregivers, and others affected by spinal CSF leak share what they’re hopeful about in terms of research and treatment. Our next symposium is October 2, 2021, and will be a hybrid event,...

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#duradash spotlight: Harvey Myers

#duradash spotlight: Harvey Myers

Harvey Myers shared his thoughts with us about how he plans to participate in this year's #duradash. Visit his page to see updates on his progress and give your support! Check out Harvey's #duradash page here! Harvey has been living with symptoms of spinal CSF leak...

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#duradash spotlight: Jodi Ettenberg

#duradash spotlight: Jodi Ettenberg

Jodi Ettenberg shared her thoughts with us about how she plans to participate in this year's #duradash. Visit her page to see updates on her progress and give your support! Check out Jodi's #duradash page here! Jodi Ettenberg, 41, has been living with spinal CSF leak...

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#duradash spotlight: Ann Elizabeth Kay Marvin

#duradash spotlight: Ann Elizabeth Kay Marvin

Ann Elizabeth Kay Marvin shared her thoughts with us about how she plans to participate in this year's #duradash. Visit her page to see updates on her progress and give your support! Check out Ann Elizabeth's #duradash page here! Ann Elizabeth, 34, has been living...

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#duradash spotlight: Leisha Jones

#duradash spotlight: Leisha Jones

Leisha Jones shared her thoughts with us about how she plans to participate in this year's #duradash. Visit her page to see updates on her progress and give your support! Check out Leisha's #duradash page here! Leisha's spinal CSF leak was surgically repaired about 7...

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#duradash spotlight: Becky Bosch

#duradash spotlight: Becky Bosch

Becky Bosch shared her thoughts with us about how she plans to participate in this year's #duradash. Visit her page to see updates on her progress and give your support! Check out Becky's #duradash page here! Becky, 33, was diagnosed with a spontaneous spinal CSF leak...

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#duradash spotlight: Ann Fields

#duradash spotlight: Ann Fields

Ann Fields shared her thoughts with us about how she plans to participate in this year's #duradash. Visit her page to see updates on her progress and give your support! Check out Ann's #duradash page here! Ann, who is 58, had a spontaneous spinal CSF leak that was...

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