Arianna Benedetti shared her thoughts with us about how she plans to participate in this year's #duradash. Visit her page to see updates on her progress and give your support! Check out Arianna's #duradash page here! Arianna, 31, began experiencing symptoms of a...
News
Comments from our most recent symposium: Advice
https://youtu.be/HeS9-VlzVn4 In this video from our most recent symposium, people affected by spinal CSF leak share words of advice. Our next symposium is October 2, 2021, and will be a hybrid event, both in-person and live-streaming. Register and find out more...
#duradash spotlight: Melissa Geraghty
Melissa Geraghty shared her thoughts with us about how she plans to participate in this year's #duradash. Visit her page to see updates on her progress and give your support! Check out Melissa's #duradash page here! Dr. Melissa Geraghty, a clinical health...
Research Roundup: Foundation-Supported Research in Progress
Four grants awarded by the Spinal CSF Leak Foundation are still in progress: Kerry Knievel, DO, and Lea Alhilali, MD, Barrow Neurological Institute. “Quantitative Analysis of Thecal Sac Volume and Morphology as Diagnostic Tool in Intracranial Hypotension.” In this...
Comments from our most recent Symposium: Hope
https://youtu.be/HYbg-SXuX7c In this video from our last symposium, patients, caregivers, and others affected by spinal CSF leak share what they’re hopeful about in terms of research and treatment. Our next symposium is October 2, 2021, and will be a hybrid event,...
Announcing our new Patient Advisory Panel for Research
Spinal CSF Leak Foundation is pleased to announce that we are accepting applications for our new Patient Advisory Panel for Research through July 1, 2021. For the application link, role description, and more information,...
#duradash spotlight: Harvey Myers
Harvey Myers shared his thoughts with us about how he plans to participate in this year's #duradash. Visit his page to see updates on his progress and give your support! Check out Harvey's #duradash page here! Harvey has been living with symptoms of spinal CSF leak...
#duradash spotlight: Jodi Ettenberg
Jodi Ettenberg shared her thoughts with us about how she plans to participate in this year's #duradash. Visit her page to see updates on her progress and give your support! Check out Jodi's #duradash page here! Jodi Ettenberg, 41, has been living with spinal CSF leak...
#duradash spotlight: Ann Elizabeth Kay Marvin
Ann Elizabeth Kay Marvin shared her thoughts with us about how she plans to participate in this year's #duradash. Visit her page to see updates on her progress and give your support! Check out Ann Elizabeth's #duradash page here! Ann Elizabeth, 34, has been living...
#duradash spotlight: Leisha Jones
Leisha Jones shared her thoughts with us about how she plans to participate in this year's #duradash. Visit her page to see updates on her progress and give your support! Check out Leisha's #duradash page here! Leisha's spinal CSF leak was surgically repaired about 7...
#duradash spotlight: Becky Bosch
Becky Bosch shared her thoughts with us about how she plans to participate in this year's #duradash. Visit her page to see updates on her progress and give your support! Check out Becky's #duradash page here! Becky, 33, was diagnosed with a spontaneous spinal CSF leak...
#duradash spotlight: Ann Fields
Ann Fields shared her thoughts with us about how she plans to participate in this year's #duradash. Visit her page to see updates on her progress and give your support! Check out Ann's #duradash page here! Ann, who is 58, had a spontaneous spinal CSF leak that was...