Melissa Geraghty shared her thoughts with us about how she plans to participate in this year's #duradash. Visit her page to see updates on her progress and give your support! Check out Melissa's #duradash page here! Dr. Melissa Geraghty, a clinical health...
News
Research Roundup: Foundation-Supported Research in Progress
Four grants awarded by the Spinal CSF Leak Foundation are still in progress: Kerry Knievel, DO, and Lea Alhilali, MD, Barrow Neurological Institute. “Quantitative Analysis of Thecal Sac Volume and Morphology as Diagnostic Tool in Intracranial Hypotension.” In this...
Comments from our most recent Symposium: Hope
https://youtu.be/HYbg-SXuX7c In this video from our last symposium, patients, caregivers, and others affected by spinal CSF leak share what they’re hopeful about in terms of research and treatment. Our next symposium is October 2, 2021, and will be a hybrid event,...
Announcing our new Patient Advisory Panel for Research
Spinal CSF Leak Foundation is pleased to announce that we are accepting applications for our new Patient Advisory Panel for Research through July 1, 2021. For the application link, role description, and more information,...
#duradash spotlight: Harvey Myers
Harvey Myers shared his thoughts with us about how he plans to participate in this year's #duradash. Visit his page to see updates on his progress and give your support! Check out Harvey's #duradash page here! Harvey has been living with symptoms of spinal CSF leak...
#duradash spotlight: Jodi Ettenberg
Jodi Ettenberg shared her thoughts with us about how she plans to participate in this year's #duradash. Visit her page to see updates on her progress and give your support! Check out Jodi's #duradash page here! Jodi Ettenberg, 41, has been living with spinal CSF leak...
#duradash spotlight: Ann Elizabeth Kay Marvin
Ann Elizabeth Kay Marvin shared her thoughts with us about how she plans to participate in this year's #duradash. Visit her page to see updates on her progress and give your support! Check out Ann Elizabeth's #duradash page here! Ann Elizabeth, 34, has been living...
#duradash spotlight: Leisha Jones
Leisha Jones shared her thoughts with us about how she plans to participate in this year's #duradash. Visit her page to see updates on her progress and give your support! Check out Leisha's #duradash page here! Leisha's spinal CSF leak was surgically repaired about 7...
#duradash spotlight: Becky Bosch
Becky Bosch shared her thoughts with us about how she plans to participate in this year's #duradash. Visit her page to see updates on her progress and give your support! Check out Becky's #duradash page here! Becky, 33, was diagnosed with a spontaneous spinal CSF leak...
#duradash spotlight: Ann Fields
Ann Fields shared her thoughts with us about how she plans to participate in this year's #duradash. Visit her page to see updates on her progress and give your support! Check out Ann's #duradash page here! Ann, who is 58, had a spontaneous spinal CSF leak that was...
#duradash spotlight: Connie Rim
Connie Rim shared her thoughts with us about how she plans to participate in this year's #duradash. Visit her #duradash page to see progress updates and to give your support! Check out Connie's #duradash page here! Connie, who is 48, acquired two spinal CSF leaks...
Start Where You Are: #duradash
By Andi Buchanan Taking responsibility Years before I had my spinal CSF leak, I was an avid yoga-goer. I did Ashtanga yoga and really loved the practice of it, the way that each day on the mat offered a different possibility. One day, I was struck by something the...