2022: The Year in Review
Here’s just some of what we celebrated in 2022! ? We debuted new video and narrative patient stories ? We updated our abstracts page to include the most up-to-date important research ? We highlighted patient voices about parenting while ill ? We shared new resources...
GivingTuesday 2022
Support the Spinal CSF Leak Foundation this GivingTuesday! GivingTuesday was launched in 2012 as a simple idea: to create a day that encourages people to do good. Over the past decade, this idea has grown into a global movement that inspires hundreds of millions of...
Save the Date for the Fifth Cedars-Sinai Intracranial Hypotension Symposium
We are excited to announce that the Fifth Cedars-Sinai Intracranial Hypotension Symposium will take place July 8-9, 2023. The symposium will feature speakers from Asia, Australia, North America, and Europe. Stay tuned for information to come about all the speakers and...
Announcing the Spinal CSF Leak Foundation Physician Directory
By far the most common email query we receive from members of our community is: How can I find a doctor who can help me? Our board of directors, our executive director, and our volunteers are all either currently or previously affected by spinal CSF leak, and so we...
Patient Stories: A sudden illness, a swift resolution
Diana’s spinal CSF leak story Many people with spinal cerebrospinal fluid (CSF) leak find the experience challenging and stressful, even if they are diagnosed and treated promptly. Diana’s case stumped the doctors she saw, and she had to advocate for...
Patient Stories
