Nick Stevens (he/they) shared their decade-long search for proper diagnosis and treatment for spinal CSF leak at the inaugural Bridging the Gap conference on November 11, 2023. Nick’s story is, overall, one of remarkable resilience as they battled through years...
Opening Remarks from the Bridging the Gap conference Dr. Andrew Callen opened our inaugural Bridging the Gap conference with a welcome that was also a stirring call to action. With an emphasis on fostering an environment where every voice is heard and every story is...
November is National Family Caregivers Month, honoring the over 53 million Americans who are unpaid caregivers to family, friends, and neighbors. Caregiving is not always convenient or expected—as the Caregiving Action Network puts it, “caregiving happens.” Many...
We are thrilled to announce the publication of Spinal CSF Leak Foundation medical advisor Dr. Deborah Friedman’s study, “Quality of Life in Patients with Confirmed and Suspected Spinal CSF Leaks”—funded by your research donations. The paper, which was just published...
Meet Dr. Andrew Callen, Assistant Professor of Neuroradiology, and Director of the CSF Leak Program at the University of Colorado. Dr. Callen specializes in diagnosing and treating CSF leaks and leads a collaborative team of radiologists, neurologists, and...
Spinal CSF Leak Foundation in conversation with Dr. Mark Mamlouk Dr. Mamlouk took some time to discuss with us his most recent publication, “Factors Predictive of Treatment Success in CT Guided Fibrin Occlusion of CSF-Venous Fistulas, a Multicenter...
