Sign up today for #duradash 2023!

May 17, 2023News

[printfriendly]

Registration is now open for #duradash!

What is #duradash?

#duradash is a community event taking place from May 28 – June 10. During these 14 days, the Spinal CSF Leak Foundation is encouraging participants to accomplish a total of 150 minutes of any activity, to be done at any time, anywhere, in support of spinal CSF leak awareness.

What you do and when you do it is up to you—and ANY activity counts, not just physical activity! Last year, participants logged activity minutes playing video games, doing photography projects, reading to their kids, taking short walks, spending time with their pets, making art while flat, and more—all of which counted towards their 150-minute goal.

Our theme is “start where you are,” and our goal is to have 100 people participate, for a grand total of 15,000 collective minutes by the end of #duradash, all to raise awareness and support research for intracranial hypotension and spinal CSF leak.

What is a spinal CSF leak?

Cerebrospinal fluid (CSF) is a special fluid that bathes and supports the brain and spinal cord. When the dura mater, a tough membrane that holds this special fluid in around the brain and spinal cord, has a hole, tear, or other defect, cerebrospinal fluid can leak out. Thus our tagline: because your dura maters®

What does it mean to start where you are?

The physical activity recommendation for Americans living with chronic illness or disability is 150 minutes per week of moderate intensity exercise. But that’s not always possible for everyone—especially people living with spinal CSF leak. While research shows that any amount of activity is better than none, for many people living with spinal CSF leak, being upright is a challenge, due to pain and neurological symptoms. This is why Spinal CSF Leak Foundation is encouraging participants in #duradash to “start where you are” and perform ANY activity appropriate for their health state. No matter where a participant is in their journey with spinal CSF leak, any activity counts!

What kind of activity counts?

Any movement or activity that is appropriate for your current state of health counts towards your #duradash goal. That could include:

  • Meditation
  • Relaxation
  • Self-care
  • Gardening
  • Sitting
  • Standing
  • Tai Chi
  • Walking
  • Biking
  • Hiking
  • Being in a pool
  • Cooking
  • Knitting
  • Painting
  • Drawing
  • Journaling
  • Reading
  • Listening to music
  • Bird-watching
  • And literally any other kind of “everyday life” activity you might do in the course of a day.

What will my campaign support?

The money raised by your campaign will support the Spinal CSF Leak Foundation’s mission and research goals. Your campaign will help us:

  • Award more research grants to advance the understanding, diagnosis, and treatment of intracranial hypotension
  • Raise awareness among medical professionals by educating physicians and others about intracranial hypotension and spinal CSF leak
  • Strengthen our advocacy efforts

How can I participate?

Via joining the campaign on Causevox:

  • Sign up by clicking on the “JOIN THE CAMPAIGN” button on our page at duradash.causevox.com
  • Create an account and personal fundraising page. Use the provided appeal or share your personal story and connection to spinal CSF leak.
  • Either CREATE A TEAM and share the page directly with team members or JOIN A TEAM and search for your team name. If you do not know the team name, contact the team leader.
  • Share your personal and team fundraising pages with friends, family, and coworkers to raise money and awareness for the Spinal CSF Leak Foundation.
  • Track progress and post updates on your personal and team fundraising pages.

 

Via facebook: create a fundraiser:

  • Go to https://www.facebook.com/fund/Spinal.CSf.Leak.Foundation/
  • Be sure to select “Spinal CSF Leak Foundation” as the non-profit to support
  • Set a target $$ amount and a finish date of June 10, 2023
  • You may edit the title of your fundraiser, for example “[your name]’s #duradash fundraiser for Spinal CSF Leak Foundation”
  • Edit the “why are you raising money” section to something like the following:
    From May 28–June 10, I’m raising money for Spinal CSF Leak Foundation by participating in #duradash, a virtual activity challenge! The funds raised will support the Spinal CSF Leak Foundation’s mission and goals. Every little bit helps! Thank you for your support.
  • Track your progress and post updates as you participate in #duradash!

For more information