Spinal CSF Leak and Dysautonomia

Spinal CSF Leak and Dysautonomia

Dysautonomia awareness month October is Dysautonomia Awareness Month. Dysautonomia (from “dys-,” meaning bad or difficult, and “autonomic,” meaning occurring involuntarily or automatically) is the name for range of conditions that affect the...
International Ataxia Awareness Day

International Ataxia Awareness Day

  September 25 is International Ataxia Awareness Day. Ataxia, a degenerative neurological disorder that affects movement and coordination, can be a rare symptom of intracranial hypotension due to spinal CSF leak. Ataxia literally means “without...
Patient Stories: Anna

Patient Stories: Anna

Anna’s spinal CSF leak story Spinal cerebrospinal fluid (CSF) leak is often confused with other diagnoses. Like so many patients, Anna was told her symptoms were due to sinus infection or migraine. Here is her story.   A gradual beginning How old were you when...
Patient Stories: A leak at 71

Patient Stories: A leak at 71

John’s spinal CSF leak story Spinal cerebrospinal fluid (CSF) leak can affect anyone at any age. John was 71 years old when he experienced his first symptoms. Here is his story.   A troubling symptom emerges How old were you when your spinal CSF leak symptoms...
Chiari Malformation Awareness Month

Chiari Malformation Awareness Month

  What is Chiari Malformation? Chiari Type 1 Malformation is a congenital structural defect in the base of the skull and cerebellum. The cerebellum is the part of the brain located behind the top of the brain stem, low at the back of the head. It has two small areas...
Pain Awareness Month

Pain Awareness Month

September is pain awareness month For most people experiencing spinal cerebrospinal fluid (CSF) leak, pain is one of the most prominent, unrelenting symptoms, and treating it and living with it can be extremely challenging. According to the US Pain Foundation, 50...