Spinal CSF Leak Foundation is proud to announce that we are partnering with NORD® to create a registry for spinal CSF leak patients. The National Organization for Rare Disorders is an independent nonprofit that built its IAMRARE® online registry platform as...
Spinal CSF Leak Treatment Treatment for spinal CSF leak varies from conservative measures to surgical procedures. Some patients have symptoms that resolve spontaneously in a matter of hours, days, or weeks without ever seeking or requiring medical care. However, some...
Diagnosis The word “diagnosis” means “discerning or distinguishing” and comes from an even older Greek word that meant “to know thoroughly” or “know apart from another.” Which is fitting, as one of the most challenging aspects of diagnosing a spinal CSF leak is...
In our recent story, “The Sky’s the Limit: A Friendship Reaches New Heights,” we met Zack and Anthony, whose friendship only strengthened in the face of Zack’s battle with spinal CSF leak. After talking with them about Anthony’s Ironman...
#theviewfromhere The Spinal CSF Leak Foundation, Spinal CSF Leak Canada, and the CSF Leak Association invited people from around the world to help highlight the hidden reality of living with a CSF leak. We asked everyone to take a photo of what they see on a typical...
Anthony Ward and Zack Tusing first met over a decade ago at a specialized summer camp for kids interested in learning about aviation. Zack, a teenaged camper, and Anthony, a counselor just a few years older than Zack, quickly bonded over their shared enthusiasm for...
