World FTD Awareness Week
This week is World FTD Awareness Week. FTD, also known as frontotemporal dementia, frontotemporal lobar degeneration (FTLD), or Pick’s disease, is a group of brain disorders caused by degeneration of the frontal and/or temporal lobes of the brain. It is the most...
Patient Stories: Anna
Anna’s spinal CSF leak story Spinal cerebrospinal fluid (CSF) leak is often confused with other diagnoses. Like so many patients, Anna was told her symptoms were due to sinus infection or migraine. Here is her story. A gradual beginning How old were you when...
Patient Stories: A leak at 71
John’s spinal CSF leak story Spinal cerebrospinal fluid (CSF) leak can affect anyone at any age. John was 71 years old when he experienced his first symptoms. Here is his story. A troubling symptom emerges How old were you when your spinal CSF leak symptoms...
Pain Awareness Month
September is pain awareness month For most people experiencing spinal cerebrospinal fluid (CSF) leak, pain is one of the most prominent, unrelenting symptoms, and treating it and living with it can be extremely challenging. According to the US Pain Foundation, 50...
Idiopathic Intracranial Hypertension Awareness Month
What is Idiopathic Intracranial Hypertension? Idiopathic Intracranial Hypertension or IIH is a condition characterized by increased pressure inside the skull. (Idiopathic means “arising from an unknown cause”; intracranial means “in the skull”; and hypertension...
Patient Stories
