Dr. Schievink’s Approach after 1111 Patients
We were delighted to see Dr. Wouter Schievink share his updated approach to the care of patients with intracranial hypotension after the 1st 1111 patients at the Intracranial Hypotension Symposium on October 13, 2018 in Marina del Rey, CA. He kindly agreed to...
Supporting research in 2018
Our mission is to reduce the suffering of those affected by spinal cerebrospinal fluid (CSF) leaks. How? – raising awareness – educating the general public and those affected – educating healthcare professionals – supporting research By funding...
The answer to Allie’s pain
It took years before Allie was able to find a proper diagnosis. But eventually she was able to get treatment for her spinal CSF leak. Allie McDaniels, before and after her surgery Allie McDaniels just got braces. That might not seem like a huge achievement for a...
Polycystic Kidney Disease and SIH
Today, September 1, is Polycystic Kidney Awareness Day, #PKDAwarenessDay. Polycystic Kidney Disease (PKD) has been associated with spontaneous intracranial hypotension (SIH) due to spinal cerebrospinal fluid (CSF) leaks in a number of cases. More study is...
Classification of Spontaneous Spinal CSF Leaks
This is a VERY important paper by Schievink and hs colleagues outlining a classification of various types of spontaneous spinal CSF leaks. This does not apply to iatrogenic or traumatic leaks. The classification was based on a large sample size of well over 500...
Patient Stories
