GivingTuesday 2020: Dr. Moghekar

GivingTuesday is just around the corner! In this conversation recorded at our Symposium this past February, Dr. Moghekar underlines the importance of a personalized approach to treating people affected by spinal CSF leak. This kind of individualized protocol will take...
Mason’s spinal CSF leak story

Mason’s spinal CSF leak story

Unlike most patients, who endure months or even years of misdiagnosis and unnecessary medications and testing, Mason benefitted from the quick-thinking actions of his long-time personal physician. Mason was 53 when his headache started. He had always been incredibly...
Berhanu’s spinal CSF leak story

Berhanu’s spinal CSF leak story

Like so many spinal CSF leak patients, Berhanu’s leak affected not just him but his entire family—and when he suffered a grave complication, it turned out their role in his treatment was critical. Berhanu has taken on many roles in his life: brother, father,...
Our mission, vision, and values

Our mission, vision, and values

The Board of Directors of Spinal CSF Leak Foundation reviews our Mission, Vission, Values, Goals, and plans on an annual basis. Earlier this year, before the COVID-19 pandemic escalated, we met to do so again. Have a look! Our Mission: to reduce the suffering of...
Because your dura maters—and so does diagnostic coding

Because your dura maters—and so does diagnostic coding

ICD-10 diagnostic codes for intracranial hypotension and spinal CSF leak When health professionals evaluate patients, they assign diagnostic labels with codes to the patient’s medical record. These codes are from the International Classification of Diseases, Tenth...
Jeff’s spinal CSF leak story

Jeff’s spinal CSF leak story

Jeff suffered from textbook symptoms of intracranial hypotension with zero results on imaging. But after extensive testing, the reason for his symptoms was finally discovered. Jeff was 44 when his headache first began. It came on in the early evening, a dull ache...