In this video, recorded at last year’s Symposium, medical professionals share their top take-aways from the annual Cedars-Sinai Intracranial Hypotension Symposium hosted in partnership with the Spinal CSF Leak Foundation. For more information about our most recent...
DEADLINE EXTENDED! Applications due by Monday, April 12, at 5 pm Eastern We are excited to announce that the Spinal CSF Leak Foundation is now accepting proposals for research grants that advance the understanding, diagnosis, or treatment of intracranial hypotension....
The next Intracranial Hypotension Symposium hosted by Cedars-Sinai in partnership with Spinal CSF Leak Foundation will be held on October 2, 2021. Watch for more details on the agenda and other details in coming weeks.
Alice’s headache started after a sinus infection—but wouldn’t end until she had surgery to address the CSF-venous fistula causing her spinal CSF leak symptoms. Alice is one of those people for whom the term “go-getter” was invented. At 58, she walked eight miles a...
This powerful video from Dr. Deborah Friedman, member of the Foundation’s Medical Advisory Board, speaks to the challenges of #spinalCSFleak and why it’s so incredibly important that we keep striving for answers. Tomorrow, Dec 1, is GivingTuesday, and we are raising...
In this short video, filmed at our Symposium in February 2020, Medical Advisory Board member Dr. Jeremy Cutsforth-Gregory mentions the surprising variance in symptoms from patient to patient. It’s part of what keeps him engaged in learning more about the disorder, and...