Life with a spinal CSF leak This GivingTuesday, the Spinal CSF Leak Foundation is raising money for a groundbreaking new study on quality of life in people with spinal CSF leak. Recently, we invited people with spinal CSF leak to share their thoughts about the...
Foundation-funded study published on differentiation between Chiari malformation type 1 and SIH We are pleased to report that a Foundation-funded research study has just been published in the Journal of Neurosurgery titled “Differentiation of Chiari malformation...
A newly published study is the first to provide incidence rates for spontaneous intracranial hypotension (SIH) in a defined population. The study, published in the journal Cephalalgia by authors Wouter Schievink, Marcel Maya, Franklin Moser, Paul Simon, and Miriam...
Each month we send out an email newsletter to our subscribers. Below is our September 2021 newsletter. Click here to see past newsletters and subscribe! The 4th Annual Cedars-Sinai Intracranial Hypotension Symposium is just one month away! The Fourth Annual...
This week we revisited three of our patient storytellers sharing their experiences with spinal CSF leak being misdiagnosed as migraine. Alex suffered for almost four years before learning his diagnosis was spinal CSF leak, due to a dural tear caused by a bone...
This week we revisited three of our patient storytellers sharing their experiences with spinal CSF leak due to CSF-venous fistula. Kathy’s only symptom was pain when she coughed. Patty had several ear surgeries before it became clear that her leak was spinal,...
