Patient Stories: Reckoning with a spinal CSF leak during lockdown
Lillie’s spinal CSF leak story Lillie’s spinal CSF leak story has some familiar elements—a sudden onset of head pain, confusion on the part of medical professionals—but presented an additional challenge, since her spinal CSF leak happened during the height...
Rare Disease Day 2022
Rare Disease Day Since 2008, Rare Disease Day has raised awareness for those affected by rare diseases. One in 20 people will live with a rare disease at some point in their life, and yet for the majority of rare diseases, there is no cure, and many rare diseases go...
Headache on the Hill 2022
Headache on the Hill 2022, which took place February 15, is an annual advocacy event in Washington DC organized by the Alliance for Headache Disorders Advocacy (AHDA), whose mission is to advocate for equitable policies for people with headache diseases—including...
Symposium 2021 Video: Dr. Ian Carroll
Dr. Ian Carroll at the 2021 Cedars-Sinai Intracranial Hypotension Symposium This video from the 2021 symposium features Dr. Ian Carroll, Associate Professor of Anesthesiology, Perioperative, and Pain Medicine, and Chief of the Stanford CSF Leak Headache Program at...
Symposium Video 2021: Dr. Waleed Brinjikji
Dr. Waleed Brinjikji at the 2021 Cedars-Sinai Intracranial Hypotension Symposium This video from the 2021 symposium features Dr. Waleed Brinjikji, Professor of Radiology and Neurosurgery at Mayo Clinic in Rochester, MN. Dr. Brinjikji presented this talk on...
Patient Stories
