Thank you to everyone who supported our fundraising efforts this GivingTuesday! Thanks to you, we raised over $40,000! Here’s what Dr. Friedman had to say: Thanks for your support this GivingTuesday, and every day! We will be sure to keep you updated on the...
Life with a spinal CSF leak This GivingTuesday, the Spinal CSF Leak Foundation is raising money for a groundbreaking new study on quality of life in people with spinal CSF leak. Recently, we invited people with spinal CSF leak to share their thoughts about the...
Even though we know that spinal CSF leak has a profound impact on physical, mental, and spiritual well-being that is comparable to, or even more severe than, other neurologic disorders producing similar symptoms, the impact of SIH on quality of life has never been...
Recently we had a chance to interview Dr. Deborah Friedman about her groundbreaking new study on quality of life in people with spinal CSF leak. Even though we know that spinal CSF leak has a profound impact on physical, mental, and spiritual well-being that is...
Recently we had a chance to interview Dr. Deborah Friedman about her groundbreaking new study on quality of life in people with spinal CSF leak. Believe it or not, the impact of spinal CSF leak on quality of life has NEVER been systematically investigated or...
Just ten days left to apply! Last week, Spinal CSF Leak Foundation opened up applications for our new Patient Advisory Panel for Research. Inclusion of the patient voice in research is crucial, especially in the context of a rare disease, because no stakeholder can...
