Spinal CSF Leak Foundation is proud to announce that we are partnering with NORD® to create a registry for spinal CSF leak patients. The National Organization for Rare Disorders is an independent nonprofit that built its IAMRARE® online registry platform as...
Registration is now open for #duradash! What is #duradash? #duradash is a community event taking place from May 28 – June 10. During these 14 days, the Spinal CSF Leak Foundation is encouraging participants to accomplish a total of 150 minutes of any activity,...
Meet Dr. Deborah Friedman, a neurologist specializing in headache medicine and neuro-ophthalmology in Dallas, Texas. Dr. Friedman was the founding director of the Headache and Facial Pain Program and Cerebrospinal Fluid Dynamics Program at the University of Texas...
Dr. Ian Carroll is an Associate Professor of Anesthesiology and Pain Management, and Chief of the Stanford CSF Leak Headache Program. In 2015 Dr. Carroll collaborated With Stanford’s Neuroradiology and Neurology Headache divisions to create the Stanford CSF Leak...
Dr. Timothy Amrhein is an Associate Professor in the Department of Radiology at Duke University Medical Center, where he also serves as the Director of Spine Intervention. He completed residency training in Diagnostic Radiology at Duke, where he served as chief...
Research update In early 2022, the Spinal CSF Leak Foundation awarded a research grant to Dr. Deborah Friedman for a pilot study titled “Quality of Life in Patients with Headache from Suspected or Confirmed Spontaneous Intracranial Hypotension (SIH).” The...
