duradash® registration is now open!
Sign up today help raise awareness and funds for spinal CSF leak research and education! duradash® is a virtual activity challenge that runs from June 1 – June 12. During these 12 days, we are encouraging people to aim for a total of 150 minutes of ANY activity, to be...
Raising Awareness via TikTok
One woman’s journey from spinal CSF leak patient to #csfleakwarrior on TikTok We often talk about raising awareness as an important part of educating laypeople and medical professionals alike about spinal CSF leak. But how, exactly, do you do that? Especially if you...
Rare Disease Day 2022
Rare Disease Day Since 2008, Rare Disease Day has raised awareness for those affected by rare diseases. One in 20 people will live with a rare disease at some point in their life, and yet for the majority of rare diseases, there is no cure, and many rare diseases go...
Symposium 2021 Video: Dr. Ian Carroll
Dr. Ian Carroll at the 2021 Cedars-Sinai Intracranial Hypotension Symposium This video from the 2021 symposium features Dr. Ian Carroll, Associate Professor of Anesthesiology, Perioperative, and Pain Medicine, and Chief of the Stanford CSF Leak Headache Program at...
Symposium Video 2021: Dr. Waleed Brinjikji
Dr. Waleed Brinjikji at the 2021 Cedars-Sinai Intracranial Hypotension Symposium This video from the 2021 symposium features Dr. Waleed Brinjikji, Professor of Radiology and Neurosurgery at Mayo Clinic in Rochester, MN. Dr. Brinjikji presented this talk on...
Patient Stories
