Symposium 2021 Video: Dr. Jeremy Cutsforth-Gregory

Symposium 2021 Video: Dr. Jeremy Cutsforth-Gregory

Dr. Jeremy Cutsforth-Gregory at the 2021 Cedars-Sinai Intracranial Hypotension Symposium This video from the 2021 symposium features Dr. Jeremy Cutsforth-Gregory, Assistant Professor of Neurology at the Mayo Clinic in Rochester, Minnesota. Dr. Cutsforth-Gregory...
Brain Awareness Week 2021: Head Pain and Spinal CSF Leak

Brain Awareness Week 2021: Head Pain and Spinal CSF Leak

Each day this week, we’ll be discussing some of the neurological symptoms and complications related to spinal cerebrospinal fluid (CSF) leak. Up first, by far the most common symptom (though not seen in every patient): Headache. The loss of CSF volume due to a leak...
Alice’s Story

Alice’s Story

Alice’s headache started after a sinus infection—but wouldn’t end until she had surgery to address the CSF-venous fistula causing her spinal CSF leak symptoms. Alice is one of those people for whom the term “go-getter” was invented. At 58, she walked eight miles a...
Mason’s spinal CSF leak story

Mason’s spinal CSF leak story

Unlike most patients, who endure months or even years of misdiagnosis and unnecessary medications and testing, Mason benefitted from the quick-thinking actions of his long-time personal physician. Mason was 53 when his headache started. He had always been incredibly...
Berhanu’s spinal CSF leak story

Berhanu’s spinal CSF leak story

Like so many spinal CSF leak patients, Berhanu’s leak affected not just him but his entire family—and when he suffered a grave complication, it turned out their role in his treatment was critical. Berhanu has taken on many roles in his life: brother, father,...
Our mission, vision, and values

Our mission, vision, and values

The Board of Directors of Spinal CSF Leak Foundation reviews our Mission, Vission, Values, Goals, and plans on an annual basis. Earlier this year, before the COVID-19 pandemic escalated, we met to do so again. Have a look! Our Mission: to reduce the suffering of...