Michael’s spinal CSF leak story Many people with spinal cerebrospinal fluid (CSF) leak experience head pain as the first indication that something is wrong. In Michael’s case, his head pain didn’t start until a year after his first symptoms began....
Diana’s spinal CSF leak story Many people with spinal cerebrospinal fluid (CSF) leak find the experience challenging and stressful, even if they are diagnosed and treated promptly. Diana’s case stumped the doctors she saw, and she had to advocate for...
Kimberly’s spinal CSF leak story Many people with spinal cerebrospinal fluid (CSF) leak experience delays in diagnosis and treatment. In Kimberly’s case, she lived with challenging symptoms for 20 years until her spinal CSF leak was finally diagnosed and...
Happy Father’s Day from the Spinal CSF Leak Foundation! All during Leakweek 2022, we shared stories from families affected by spinal CSF leak. In this video excerpt, Burke speaks about what it took to advocate for his son Jack when Jack developed symptoms of a spinal...
It’s not uncommon for patients to be disbelieved before eventually finding a proper diagnosis and effective treatment for spontaneous intracranial hypotension due to a spinal cerebrospinal fluid (CSF) leak. When Jack became ill at age 14, his parents Jody and...
It’s not uncommon for patients to be disbelieved before eventually finding a proper diagnosis and effective treatment for spontaneous intracranial hypotension due to a spinal cerebrospinal fluid (CSF) leak. When Jack became ill at age 14, his parents Jody and...
