Our mission is to reduce the suffering of those affected by spinal cerebrospinal fluid (CSF) leaks. How? – raising awareness – educating the general public and those affected – educating healthcare professionals – supporting research By funding...
Content warning: This post mentions suicide. If you are struggling, please dial 988 to connect with The National Suicide and Crisis Lifeline, or contact the Crisis Text Line by texting HOME to741741. Karen and Bob’s Story It was Valentine’s Day in 1989 when...
It took years before Allie was able to find a proper diagnosis. But eventually she was able to get treatment for her spinal CSF leak. Allie McDaniels, before and after her surgery Allie McDaniels just got braces. That might not seem like a huge achievement for a...
Disability Associated with Headache Disorders is Underappreciated This awareness day is part of Migraine & Headache Awareness Month #MHAM A few facts: Migraine headache is the leading cause of disability among neurologic disorders. Migraine headache is the...
Today we would like to recap #leakweek 2018 Our primary goal of Leak Week has been to raise awareness about spinal cerebrospinal fluid (CSF) leak so that more patients might be correctly diagnosed and treated. We featured 3 very informative expert interviews: • Wouter...
Diane thought her spinal CSF leak had been thoroughly treated. But when her symptoms returned, it would take nearly eight years and surgery to fully address the underlying cause: a CSF-venous fistula. It was summer 2008 when Diane, on vacation with her family, bent...
