GivingTuesday 2021
What is GivingTuesday? GivingTuesday, a day when people from around the world support their favorite causes, is built around the idea of “radical generosity,” which the organization defines as “the concept that the suffering of others should be as intolerable to us as...
Research Update: Chiari 1 vs. SIH
Foundation-funded study published on differentiation between Chiari malformation type 1 and SIH We are pleased to report that a Foundation-funded research study has just been published in the Journal of Neurosurgery titled “Differentiation of Chiari malformation...
Patient Advisory Panel for Research: Patient and Physician Perspectives
Spinal CSF Leak Foundation is launching our Patient Advisory Panel for Research because we believe that inclusion of the patient voice is crucial in moving research forward. As all of our board members, volunteers, and executive director are currently or have been...
Kathy’s Spinal CSF Leak Story
For many people experiencing spinal cerebrospinal fluid (CSF) leak, the most prominent symptom is a headache that worsens when upright and improves when lying down. But some patients never experience this kind of orthostatic headache symptom. Kathy Webster was one of...
#duradash spotlight: Arianna Benedetti
Arianna Benedetti shared her thoughts with us about how she plans to participate in this year’s #duradash. Visit her page to see updates on her progress and give your support! Check out Arianna’s #duradash page here! Arianna, 31, began experiencing...
Patient Stories
