February 28 is Rare Disease Day.
A disease or disorder is defined as rare in the US when it affects fewer than 200,000 Americans at any given time.
Spontaneous spinal CSF leaks are considered rare in the USA with an estimated incidence of 1 in 20,000 per year.
Iatrogenic spinal CSF leaks are more common than spontaneous ones but the prevalence has not been well-studied.
On February 28, let the world know that Spinal CSF Leaking is a rare disease and those who are impacted desperately need:
• Increased funding for research
• More timely and accurate diagnosis
• Improved quality of patient care
• Better treatments and a cure
To learn more about Spinal CSF Leaks, please peruse our website.