The Board of Directors of Spinal CSF Leak Foundation reviews our Mission, Vission, Values, Goals, and plans on an annual basis. Earlier this year, before the COVID-19 pandemic escalated, we met to do so again. Have a look!
Our Mission:
to reduce the suffering of persons affected by intracranial hypotension or spinal cerebrospinal fluid leak.
Our Vision:
for each person affected by intracranial hypotension or spinal cerebrospinal fluid leak to receive prompt diagnosis, access to appropriate testing and treatments, and a favorable outcome.
Our Values:
Compassion
Our compassion for affected individuals fuels our efforts.
Integrity
Everything we do is with the utmost integrity.
Inclusiveness
We honor and respect the diversity of our community.
Hopefulness
Despite the challenges, we maintain hope for a better future.
Our Goals:
Elevate Awareness
We seek to raise the level of awareness of intracranial hypotension or spinal cerebrospinal fluid leak among laypersons and health professionals.
Educate
We support and provide professional education on all clinical aspects of intracranial hypotension or spinal cerebrospinal fluid leak.
Support
We provide each person affected by intracranial hypotension or spinal cerebrospinal fluid leak access to compassionate, high quality informational and emotional support.
Advocate
We contribute our voice in advocating for better access to care and better support systems.
Connect
We promote collaborations among all stakeholders to accelerate advances.
Research
We encourage and support research on the epidemiology, causes, diagnostic testing, treatments, complications and outcomes of intracranial hypotension or spinal cerebrospinal fluid leak.