The clinical presentations of intracranial hypotension due to spinal CSF leak can be quite variable. These THREE on-demand videos from sessions at the Intracranial Hypotension Symposium held on February 8, 2020 should not be missed. Basics of Spontaneous and...
We are pleased to announce this intracranial hypotension research grant to Principal Investigator, Fawad A. Khan, MD and Co-Investigator, Jonathan D. Nussdorf, MD of Ochsner Clinic Foundation in New Orleans, LA. This is one of two research grants awarded during the...
We are pleased to announce this intracranial hypotension research grant to Principal Investigator, Timothy Amrhein, MD and Co-Investigator, Linda Gray Leithe, MD, neuroradiologists at Duke University Medical Center in Durham, NC. Development of a Novel Flexible Needle...
Katie’s spontaneous spinal CSF leak seemed to heal on its own, but several years later, a minor car accident resulted in a relapse. She needed surgery to get her life back. https://youtu.be/5OykwXWo3tc There was nothing that precipitated Katie’s headache. No accident,...
Emily’s brain MRI led her doctors to think she had a pituitary tumor. Instead, what she really had was a spinal CSF leak. https://youtu.be/XKA1OeBnz5A Emily was a couple weeks into a one-month trial of Cross-Fit when the headaches started. Driving home after a...
Aiza’s spinal CSF leak was misdiagnosed for five years. Under the guidance of her doctor, she began trying every possible migraine medication, but nothing worked—because Aiza did not have a migraine headache. What she had was spontaneous intracranial hypotension due...
We are now accepting proposals for research grants up to $25,000 on the topic of INTRACRANIAL HYPOTENSION.Please download the Request for Proposals Document for details. RFP-2019-Spinal-CSF-Leak-FoundationDownload
Alex played in a softball league with other fathers from his children’s school. After one particularly strenuous game, he began to feel a nagging ache in the back of his head. By the next morning, it had intensified into a knife-like pain, a terrible headache unlike...
Mandii and her aunt Heidi had to fight to get her dad, Rex, the care he needed to get better. Rex following his treatment While headache is the most common symptom resulting from intracranial hypotension (or low pressure in the head) due to a spinal cerebrospinal...
NEW! Listen to this story Developing a low-pressure headache after receiving epidural anesthesia in childbirth is not uncommon: New mothers are often warned about the possibility that an anesthetist’s needle can slip just a hair too far, piercing the dura, allowing...
Like many patients with a spinal cerebrospinal fluid (CSF) leak, Patty was diagnosed with many things—and underwent some needless procedures—before finally receiving the correct diagnosis and treatment. https://youtu.be/bhOwJKCFPfk Patty has always been incredibly...
A lucky coincidence helped connect Katrina to an expert who could correctly diagnose and treat her spinal CSF leak. Katrina with her husband Katrina had just returned to Pasadena after a month-long trip to Australia with her boyfriend. She was 29, an interior designer...