Often, when referring to any kind of cerebrospinal fluid leak, the non-specific term CSF leak is used. Few realize that a CSF leak may arise in the head OR in the spine, AND that these are two different disorders. Let’s try to clear up some of the confusion. What is a...
Updates from the Spinal CSF Leak Foundation
Intracranial hypotension – many mimics
The diagnosis of intracranial hypotension due to spinal cerebrospinal fluid (CSF) leak can be challenging for physicians and other healthcare professionals. Even though the most frequent symptom is a positional headache – worse after minutes to hours upright and...
#leakweek 2018 in review
Today we would like to recap #leakweek 2018 Our primary goal of Leak Week has been to raise awareness about spinal cerebrospinal fluid (CSF) leak so that more patients might be correctly diagnosed and treated. We featured 3 very informative expert interviews: • Wouter...
Diane’s headache story
Diane thought her spinal CSF leak had been thoroughly treated. But when her symptoms returned, it would take nearly eight years and surgery to fully address the underlying cause: a CSF-venous fistula. It was summer 2008 when Diane, on vacation with her family, bent...
leakweek 2018 – day 6
This is Day 6 of #leakweek 2018 – because your dura maters℠ Spinal cerebrospinal fluid (CSF) leak is an under-diagnosed cause of disabling daily headache with other neurological symptoms and complications that can happen to anyone. A spinal CSF leak is...
An interview with Dr. Linda Gray
Spinal cerebrospinal fluid (CSF) leak is an under-diagnosed cause of disabling daily headache with other neurological symptoms and complications that can happen to anyone. The underlying problem is a hole or tear of the dura mater along the spine, the tough...
leakweek 2018 – day 5
This is Day 5 of #leakweek 2018 – because your dura maters℠ Spinal cerebrospinal fluid (CSF) leak is an under-diagnosed cause of disabling daily headache with other neurological symptoms and complications that can happen to anyone. A spinal CSF leak is...
The Beginning of Everything – an interview with Andrea J. Buchanan
Andrea J. Buchanan is a New York Times bestselling author whose latest book is THE BEGINNING OF EVERYTHING. She chronicles her experience with a spinal cerebrospinal fluid (CSF) leak that abruptly derailed her ability to function and to think normally. She leads us...
leakweek 2018 – day 4
This is Day 4 of #leakweek 2018 – because your dura maters℠ Spinal cerebrospinal fluid (CSF) leak is an under-diagnosed cause of disabling daily headache with other neurological symptoms and complications that can happen to anyone. A spinal CSF leak is...
An interview with Dr. Silberstein
Spinal cerebrospinal fluid (CSF) leak is an under-diagnosed cause of disabling daily headache with other neurological symptoms and complications that can happen to anyone. The underlying problem is a hole or tear of the dura mater along the spine, the tough layer that...
leakweek 2018 – day 3
This is Day 3 of #leakweek 2018 – because your dura maters℠ Spinal cerebrospinal fluid (CSF) leak is an under-diagnosed cause of disabling daily headache with other neurological symptoms and complications that can happen to anyone. A spinal CSF leak is...
Lianne’s headache story
Delayed diagnosis of intracranial hypotension due to spinal CSF leak remains common. Lianne suffered with debilitating daily headache for 15 years before she was correctly diagnosed and treated. Here is Lianne’s story. Lianne, with Scrappy Doodle, Gus & Codie In...