Emma was an incredibly active child when she started exhibiting symptoms of spinal CSF leak. Now nearly 12 years into her recovery, she shares her experience with us here.
Updates from the Spinal CSF Leak Foundation
A Caregiver’s Perspective: Karri’s story
When Karri’s daughter Hailey became ill, it started their family on a ten-year search for answers. See Karri’s story of being a caregiver for a child with spinal CSF leak.
#duradash2022 spotlight: Lindsay Chandler
Lindsay Chandler shared her thoughts with us about her experience with spinal CSF leak and how she plans to participate in #duradash2022.
A decade-long search for answers: Hailey’s spinal CSF leak story
Hailey got her spinal CSF leak playing soccer as a child. It took her TEN YEARS to find a diagnosis and effective treatment. See her family’s stories here.
LeakWeek2022: FACT vs FICTION
All throughout leakweek, we’re sharing FACTS and FICTIONS about spinal CSF leak. Test your knowledge and share with family and friends who may not be aware!
#duradash2022 spotlight: Team (Un)bearable
Cosmo and Team (Un)bearable shared their thoughts with us about spinal CSF leak and how they plan to participate in #duradash2022.
National Migraine and Headache Awareness Month
Migraine is the most common misdiagnosis spinal CSF leak patients receive. Just one of many reasons why we support #MHAM.
#duradash2022 spotlight: Bridget Janney
Bridget Janey shared her thoughts with us about her experience with spinal CSF leak and how she plans to participate in #duradash2022.
Video Presentation: Coping with Gaslighting on the way to Diagnosis
A video presentation by Dr. Melissa Geraghty on coping with medical gaslighting on the way to a spinal CSF leak diagnosis.
duradash® registration is now open!
duradash® registration is now open! Sign up today to support research, education, and awareness by the Spinal CSF Leak Foundation
Learning to ADAPT: Thrive
Jodi Blaszyk, PsyD, spinal CSF leak patient and clinical psychologist, discusses what it means to thrive while living with spinal CSF leak.
Learning to ADAPT: Plan
Jodi Blaszyk, PsyD, spinal CSF leak patient and clinical psychologist, discusses the importance of planning for positive mental health.