An update on the Foundation-funded research study “Quantitative analysis of thecal sac volume and morphology as a diagnostic tool in SIH.”
Research Update: Thecal Sac Volume and Morphology as a Diagnostic Tool in SIH
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Updates from the Spinal CSF Leak Foundation
Happy Father’s Day: A Father’s Story
In this video excerpt, Burke speaks about what it took to advocate for his son, Jack, who developed symptoms of spinal CSF leak at age 14.
New: Downloadable “Fact or Fiction?” cards
All of the “fact or fiction?” cards from #leakweek2022, available for download now in our “resource documents” section.
Duradash® Awards
Welcome to the 2022 Duradash® Awards! We have been so thrilled to see so many people participate in this year's event, and work so hard to raise awareness in so many creative ways! Today, we presented our awards on social media. Here are all the winners, in all the...
Thanks for a fantastic leak week!
THANK YOU to Spinal CSF Leak Canada and the CSF Leak Association for helping to create a truly informative, memorable, and INTERNATIONAL leak week! All three groups worked together to collaborate on this year's event, and we have been excited to share it—and to...
LeakWeek2022: FACT vs FICTION final!
All throughout leakweek, we’re sharing FACTS and FICTIONS about spinal CSF leak. Test your knowledge and share with family and friends who may not be aware!
A Caregiver’s Perspective: Burke’s story
When Jack showed symptoms of a spinal csf leak at age 14, his parents Burke and Jody had to push hard for him to be taken seriously. See Burke’s story of being a caregiver for a child with spinal CSF leak.
A Caregiver’s Perspective: Jody’s story
When Jack showed symptoms of a spinal csf leak at age 14, his parents had to push hard for him to be taken seriously. See Jody’s story of being a caregiver for a child with spinal CSF leak.
Pushing back against denial: Jack’s spinal CSF leak story
When Jack showed symptoms of a spinal CSF leak at age 14, his parents had to push hard for him to be taken seriously. Here is Jack’s story.
#duradash2022 spotlight: Jennifer Harding
Jennifer Harding shared her thoughts with us about her experience with spinal CSF leak and how she plans to participate in #duradash2022.
LeakWeek2022: FACT vs FICTION, round two!
All throughout leakweek, we’re sharing FACTS and FICTIONS about spinal CSF leak. Test your knowledge and share with family and friends who may not be aware!
A Caregiver’s Perspective: Amberly’s story
When Amberly’s daughter Emma became ill, she was surprised by how elusive diagnosis and treatment were. See Amberly’s story of being a caregiver for a child with spinal CSF leak.