Hailey got her spinal CSF leak playing soccer as a child. It took her TEN YEARS to find a diagnosis and effective treatment. See her family’s stories here.
A decade-long search for answers: Hailey’s spinal CSF leak story
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Updates from the Spinal CSF Leak Foundation
LeakWeek2022: FACT vs FICTION
All throughout leakweek, we’re sharing FACTS and FICTIONS about spinal CSF leak. Test your knowledge and share with family and friends who may not be aware!
#duradash2022 spotlight: Team (Un)bearable
Cosmo and Team (Un)bearable shared their thoughts with us about spinal CSF leak and how they plan to participate in #duradash2022.
National Migraine and Headache Awareness Month
Migraine is the most common misdiagnosis spinal CSF leak patients receive. Just one of many reasons why we support #MHAM.
#duradash2022 spotlight: Bridget Janney
Bridget Janey shared her thoughts with us about her experience with spinal CSF leak and how she plans to participate in #duradash2022.
Video Presentation: Coping with Gaslighting on the way to Diagnosis
A video presentation by Dr. Melissa Geraghty on coping with medical gaslighting on the way to a spinal CSF leak diagnosis.
duradash® registration is now open!
duradash® registration is now open! Sign up today to support research, education, and awareness by the Spinal CSF Leak Foundation
Learning to ADAPT: Thrive
Jodi Blaszyk, PsyD, spinal CSF leak patient and clinical psychologist, discusses what it means to thrive while living with spinal CSF leak.
Learning to ADAPT: Plan
Jodi Blaszyk, PsyD, spinal CSF leak patient and clinical psychologist, discusses the importance of planning for positive mental health.
Learning to ADAPT: Advocate and Educate
Jodi Blaszyk, PsyD, spinal CSF leak patient and clinical psychologist, shares how advocating and educating can be important for mental health.
Learning to ADAPT: Diagnosis
Jodi Blaszyk, PsyD, spinal CSF leak patient and clinical psychologist, discusses how diagnosis can affect mental health.
Learning to ADAPT: Acceptance
Jodi Blaszyk, PsyD, spinal CSF leak patient and clinical psychologist, discusses the importance of acceptance.