For LeakWeek 2023 Day four, the Spinal CSF Leak Foundation, Spinal CSF Leak Canada, and the CSF Leak Association invited people around the world to help highlight the hidden reality of living with a spinal CSF leak.
Patient Stories
Find out what it’s like to live with spinal CSF leak through the experiences of our patient storytellers. Read their accounts below, or watch them share their stories through video.
The Sky’s the Limit: A Friendship Reaches New Heights
The friendship between two friends with a shared love of aviation strengthens when one of them is struck with a spinal CSF leak.
My Year of Adaptation: What I Learned Putting ADAPT into Action
Jodi Boos-Blaszyk reflects on a year of putting her ADAPT techniques into action as she investigates the source of her spinal CSF leak.
Tough Mothers 2023: Happy Mother’s Day
A round-up of all our posts from this Mother’s Day about mothering with a spinal CSF leak.
Tough Mothers: Jane
Jane, mother of two, shares her thoughts on parenting with a spinal CSF leak.
Tough Mothers: Anne
Anne, mother of one, shares her thoughts on parenting with a spinal CSF leak.
Tough Mothers: Laura
Laura, mother of one, shares her thoughts on parenting with a spinal CSF leak.
Tough Mothers: Laurie
Laurie, mother of three, shares her thoughts on parenting with a spinal CSF leak.
Tough Mothers: Jennifer
Jennifer, mother of two, shares her thoughts on parenting with a spinal CSF leak.
Tough Mothers: Shannon
Shannon, mother of two, shares her thoughts on parenting with a spinal CSF leak.
Tough Mothers: Ryne
Ryne, mother of four, shares her thoughts on parenting with a spinal CSF leak.
Patient Stories: Balancing Act
Unlike many people with a spinal CSF leak, Michaels’ symptoms did not start with positional head pain. Here is Michael’s story.