We are pleased to share the news that we have been selected as a 2023 #RAREis Global Advocate Grant award recipient.
RAREis Grant Awards Announced
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News
2023 Intracranial Hypotension Conference: Highlights
Highlights from this year’s Intracranial Hypotension Conference, which took place July 8-9, 2023
Meet our Medical Advisors: Dr. Peter Kranz
Meet Dr. Peter Kranz, member of the Spinal CSF Leak Foundation’s medical advisory board.
Fellow Education Funding Award
The Spinal CSF Leak Foundation is pleased to announce Dr. Emma Sechrist as the recipient of our Fellow Education Funding Award. This award enables a physician in training to attend this year’s Cedars-Sinai Intracranial Hypotension Conference, coming up July 8-9, 2023.
Duradash® Awards 2023
Welcome to the 2023 Duradash® Awards! We have been so thrilled to see so many people participate in this year’s event, and work so hard to raise awareness in so many creative ways!
Leak Week and Beyond: Looking ahead
As we wrap up this year’s Leak Week, here’s a look at what’s on the horizon for us.
Research Update: Your funding at work!
Research update: Dr. Deborah Friedman’s study, “Quality of Life in Patients with Confirmed and Suspected Spinal CSF Leaks,” has been accepted for publication by the journal Neurology.
LeakWeek 2023 Day seven: Research
For LeakWeek 2023 Day seven, the Spinal CSF Leak Foundation, Spinal CSF Leak Canada, and the CSF Leak Association are teaming up to talk about research.
Partnering with NORD® to create a patient registry
Spinal CSF Leak Foundation is proud to announce that we are partnering with NORD® to create a registry for spinal CSF leak patients.
LeakWeek 2023 Day Six: Treatment
For LeakWeek 2023 Day six, the Spinal CSF Leak Foundation, Spinal CSF Leak Canada, and the CSF Leak Association are teaming up to talk about treatment.
LeakWeek 2023 Day Five: Diagnosis
For LeakWeek 2023 Day five, the Spinal CSF Leak Foundation, Spinal CSF Leak Canada, and the CSF Leak Association are teaming up to talk about diagnosis.
The Sky’s the Limit: Advice from Zack and Anthony
Friends Anthony and Zack share their advice for people experiencing spinal CSF leak and those who care about them.