Alex played in a softball league with other fathers from his children’s school. After one particularly strenuous game, he began to feel a nagging ache in the back of his head. By the next morning, it had intensified into a knife-like pain, a terrible headache unlike...
News
Recovery for Mandii’s dad – a spinal CSF leak story
Mandii and her aunt Heidi had to fight to get her dad, Rex, the care he needed to get better. Rex following his treatment While headache is the most common symptom resulting from intracranial hypotension (or low pressure in the head) due to a spinal cerebrospinal...
Nicole’s post-partum headache
NEW! Listen to this story Developing a low-pressure headache after receiving epidural anesthesia in childbirth is not uncommon: New mothers are often warned about the possibility that an anesthetist’s needle can slip just a hair too far, piercing the dura, allowing...
Patty’s spinal CSF leak story
Like many patients with a spinal cerebrospinal fluid (CSF) leak, Patty was diagnosed with many things—and underwent some needless procedures—before finally receiving the correct diagnosis and treatment. https://youtu.be/bhOwJKCFPfk Patty has always been incredibly...
Katrina’s spinal CSF leak story
A lucky coincidence helped connect Katrina to an expert who could correctly diagnose and treat her spinal CSF leak. Katrina with her husband Katrina had just returned to Pasadena after a month-long trip to Australia with her boyfriend. She was 29, an interior designer...
Martha’s spinal CSF leak story
Martha considers herself fortunate to have received a relatively speedy diagnosis and treatment—but it wasn’t an easy process. https://youtu.be/O5aZao0ptMw Martha was on her way home from her son’s hockey tournament when she first noticed the headache. As a former...
Ann’s Courage, Strength & Faith
by Andi BuchananAnn Fields is passionate about education. She’s spent the past 31 years as a special education teacher. And so it’s no surprise that she views her upcoming retirement party, on June 2, as a teachable moment. Even the invitations she made to hand out...
How can I #duradash?
We recently reviewed the updated Physical Activity Guidelines for Americans and several studies demonstrating the improved health benefits that come with short durations of physical activity that may be applicable to those with limited upright time. See more on that...
Every step counts
Many people experiencing intracranial hypotension due to a spinal cerebrospinal fluid (CSF) leak find physical activity challenging due to their limited ability to be upright for prolonged periods of time. In a previous post, we focused on deconditioning in...
#leakweek 2019 #duradash
Get ready to #duradash — a virtual race in association with #leakweek Help to raise awareness of #spinalCSFleak #becauseyourduramatersIt is easy to participate!What is #duradash? #duradash will allow you to participate in a virtual race of any activity you are able to...
HeadsUp episode from National Headache Foundation
Our friends at the National Headache Foundation (NHF) feature Low Pressure Headache or intracranial hypotension due to spinal cerebrospinal fluid (CSF) leak on this episode of HeadsUp. In this podcast, Dr. Vincent Martin, president of the NHF, explains how some people...
New Canadian spinal CSF leak organization
We are so excited to share the news that a new non-profit organization has been formed in Canada to advance awareness and research on spinal CSF leak and intracranial hypotension. Like our foundation here in the USA, the founders have been impacted by this disorder....