Aiza’s spinal CSF leak was misdiagnosed for five years. Under the guidance of her doctor, she began trying every possible migraine medication, but nothing worked—because Aiza did not have a migraine headache. What she had was spontaneous intracranial hypotension due...
We are now accepting proposals for research grants up to $25,000 on the topic of INTRACRANIAL HYPOTENSION.Please download the Request for Proposals Document for details. RFP-2019-Spinal-CSF-Leak-FoundationDownload
Alex played in a softball league with other fathers from his children’s school. After one particularly strenuous game, he began to feel a nagging ache in the back of his head. By the next morning, it had intensified into a knife-like pain, a terrible headache unlike...
Mandii and her aunt Heidi had to fight to get her dad, Rex, the care he needed to get better. Rex following his treatment While headache is the most common symptom resulting from intracranial hypotension (or low pressure in the head) due to a spinal cerebrospinal...
NEW! Listen to this story Developing a low-pressure headache after receiving epidural anesthesia in childbirth is not uncommon: New mothers are often warned about the possibility that an anesthetist’s needle can slip just a hair too far, piercing the dura, allowing...
Like many patients with a spinal cerebrospinal fluid (CSF) leak, Patty was diagnosed with many things—and underwent some needless procedures—before finally receiving the correct diagnosis and treatment. https://youtu.be/bhOwJKCFPfk Patty has always been incredibly...
A lucky coincidence helped connect Katrina to an expert who could correctly diagnose and treat her spinal CSF leak. Katrina with her husband Katrina had just returned to Pasadena after a month-long trip to Australia with her boyfriend. She was 29, an interior designer...
Martha considers herself fortunate to have received a relatively speedy diagnosis and treatment—but it wasn’t an easy process. https://youtu.be/O5aZao0ptMw Martha was on her way home from her son’s hockey tournament when she first noticed the headache. As a former...
by Andi BuchananAnn Fields is passionate about education. She’s spent the past 31 years as a special education teacher. And so it’s no surprise that she views her upcoming retirement party, on June 2, as a teachable moment. Even the invitations she made to hand out...
We recently reviewed the updated Physical Activity Guidelines for Americans and several studies demonstrating the improved health benefits that come with short durations of physical activity that may be applicable to those with limited upright time. See more on that...
Many people experiencing intracranial hypotension due to a spinal cerebrospinal fluid (CSF) leak find physical activity challenging due to their limited ability to be upright for prolonged periods of time. In a previous post, we focused on deconditioning in...
Get ready to #duradash — a virtual race in association with #leakweek Help to raise awareness of #spinalCSFleak #becauseyourduramatersIt is easy to participate!What is #duradash? #duradash will allow you to participate in a virtual race of any activity you are able to...